This rare but very serious autoimmune disorder attacked John very aggressively. Within hours of knowing what he was dealing with he became paralyzed and it only continued to get worse within the days ahead. By the end of the week Johns mobility was pretty much non existent. John had nearly complete paralysis of the face and entire body. Scared and quite devastated he started treatment immediately. They ordered him to have two rounds of IVIg.
It seemed the treatments were working. John slowly started to gain some minor mobility back and was moved to the physical therapy floor at Trinity where he started daily P.T. sessions with their amazing team and staff. We had a projection date to hopefully bring John home by the first couple days of February. This would have been around the one month mark for John being admitted in the hospital. As we passed that projection date and more time passed it seemed like John was starting to get weak again. They had mentioned wanting to do another round of IVIg. At this point we started doing some research and wanting a possible second opinion to escalate this to another hospital where John could possibly seek more forms of treatment that maybe weren't being offered here at Trinity. On February 28th our prayers were answered. We got the second opinion we were wanting along with a referral to have John transferred to the Mayo Clinic in Rochester, MN. The Mayo Clinic treats 500 patients a year with Guillain-Barre Syndrome so to say we were more than elated to have had a Neurologist pick John up as a patient there was an understatement. Since arriving at Mayo John has started more treatment. John is currently getting plasma exchange treatments 3x a week on Mondays, Wednesdays, and Fridays. He will continue to do so this week and next week. Since forgoing his first treatment visible yet small changes have occurred. John is gaining mobility back in his arms, toes, and hands. Our hopes are after completing the next two weeks of plasma exchange he will be able to continually progress with his mobility so he can continue his physical therapy and return home to his family. I did not think that typing out this gofundme would be near this emotional. John has been blessed with thee most amazing care throughout this journey and my parents have been lucky enough to take time off from their jobs to be by his side non stop through the process. John has also been fortunate enough to have Blue Cross Blue Shield as an insurance provider but with that being said they unfortunately don't cover all treatment and care. My brother John is accumulating hospital bills and I would love nothing more than to be able to help him by taking this burden no matter how small off of his shoulders. Lots of family and friends text, and call daily asking about Johns treatment, care, and progress. I'm going to start a Caring Bridge today to give updates on John 2-3 times a week to keep all our loved ones up to speed on Johns progress.
If anyone would like to help out by donating towards Johns medical bills you may do so here. Thank you so much to everyone that has sent John love, prayers and gifts. You may leave messages to John on the Caring Bridge which I'm sure he'd love to read. Your kind words, and encouragement mean more to him and our family than you would ever know. Thank you all again and much love to you.
Kelly Titus Wood
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