Hello all my name is Tanisha Robinson,  On Wednesday August 19, 2020  my son Davon was called home to be with the Lord.  When I woke up to check in on him as I always did he was already gone.  Since birth my son has seen many doctors with multiple diagnosis such as epilepsy, chronic upper respiratory disease, fragile X and hypotonia that all sprang from one genetic disorder called chromosome X-link degeneration Q-28.  In which all things that were learned would eventually be lossed.  Davon appeared as a normal child at birth but all changed at 2 months old when the pnuemonia started then the seizures.  In 2005 Davon had a seizure that obstructed his upper airway causing brain damage so everything that he learned i.e. crawled, babbled, ate by mouth, watched TV; all were wiped out and Davon became a vegetable.  Davon was placed on a C-pap at first then progressed to 24hr ventilation and a g-tube for the next 15 years in which he succumbed at the age of 20, a couple of weeks before his 21st birthday.  He was very loved and taken care of but one thing that just couldn't be because of his health condition was Davon was not entitled to have life insurance. Unfortunately they do not provide life insurance to the ill even if you are born with it.  I need your help whether it be big or small to send him away as a prince should.  Thank you in advance in this hard time, he was my prince my first born.