Turner Seale's Medical Expenses
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Turner our 6 yr old son is awaiting his 12th surgery scheduled for December 10, 2014. All 12 surgeries have occurred in the past 4.5 years. At 18 months Turner was diagnosed with a very rare bone condition called Craniometaphyseal Dysplasia (CMD).
Turner is the oldest of 3 children (Turner 6, Preston 4 and Ashlyn 3). Just 18 months after Turner's diagnosis, our 2nd son Preston had to be scheduled for heart surgery. Preston was born with heart murmur and developed Pulmonary Stenosis in which the doctors had to balloon the heart valve to open it up. As of today Preston is doing well and it is unknown if any future surgeries will be required. Thankfully Ashlyn has been heathly and has not required any special medical care.
With Turner's condition, he will continue to need surgeries throughout his life. This condition could cause blindness, deafness and facial paralysis along with many other life altering conditions. Due to these potential conditions, Turner is required to have an MRI with anesthesia every year along with multiple check-ups with many specialists each year. To date, Turner has suffered moderate hearing loss in his right ear requiring a hearing aid. As he grows a new hearing aid will be required every few years. None of the cost for a hearing aid is covered by insurance.
Over the past 5 years we have had to cover an estimated out of pocket cost of over $100,000. We have reached out and tried to get assistance from multiple agencies but due to Holly and I having good careers none of the agencies are willing to help. All of this special medical care has caught up to our family and we are asking for your help. We are a hard working family and hope that with your help we can get our financial situation back on tract so that one day we can help other families in a similar situation.
Turner is the oldest of 3 children (Turner 6, Preston 4 and Ashlyn 3). Just 18 months after Turner's diagnosis, our 2nd son Preston had to be scheduled for heart surgery. Preston was born with heart murmur and developed Pulmonary Stenosis in which the doctors had to balloon the heart valve to open it up. As of today Preston is doing well and it is unknown if any future surgeries will be required. Thankfully Ashlyn has been heathly and has not required any special medical care.
With Turner's condition, he will continue to need surgeries throughout his life. This condition could cause blindness, deafness and facial paralysis along with many other life altering conditions. Due to these potential conditions, Turner is required to have an MRI with anesthesia every year along with multiple check-ups with many specialists each year. To date, Turner has suffered moderate hearing loss in his right ear requiring a hearing aid. As he grows a new hearing aid will be required every few years. None of the cost for a hearing aid is covered by insurance.
Over the past 5 years we have had to cover an estimated out of pocket cost of over $100,000. We have reached out and tried to get assistance from multiple agencies but due to Holly and I having good careers none of the agencies are willing to help. All of this special medical care has caught up to our family and we are asking for your help. We are a hard working family and hope that with your help we can get our financial situation back on tract so that one day we can help other families in a similar situation.
Organizer
Chuck Seale
Organizer
Plainfield, IN
