As the weekend went on, my concern grew and I knew I needed to know what was plaguing her. After our discussion she confirmed what I observed over the weekend. She was having disabling neurological symptoms. More specifically, they were symptoms of multiple sclerosis (MS). However, while she was showing symptoms right after the New Year, she was not 100% sure that was the diagnosis.
In that moment I experienced fear, sadness, and anger. Why did my mom not know what was disabling her? And the answer is why I have to come to you. Kathy could not get the proper testing because of insurance. Due to being part time, a result of patient availability, she would not be covered by insurance unless she bought her own. However, when it came down to being able to pay rent and feed herself, the high insurance premiums could not be afforded. The issue of insurance compounded by the fear of the answer she did not want to hear, Kathy delayed her testing.
Delaying is not longer an option. Kathy’s symptoms have worsened. Therefore, last week her doctor ordered the neurological testing to confirm the diagnosis. However, testing is not free, and without insurance, everything is out of her pocket. Then once a treatment plan is in place, she has to be able to afford her medication. Which will be nearly impossible; especially if she reaches the point of not being able to work. Kathy is stuck and scared feeling like there is very little she can do to help herself.
If you know Kathy, you know she is one to not ask for help, but always will be there if you need help. Even now she is reluctant to ask; however, I know we have to. In order for Kathy to get on the road to managing this disease, help is needed. Your help is needed. Whatever you are able to contribute will be appreciated. It can be monetary or just spreading the word to others; we greatly appreciate all efforts to help Kathy.
The Stone Family (Kathy, Nick, and Ed)
- Susan Jablonski
- Dana Shannon
- Karen Stafford-May
- Debra Berloth
Organizer and beneficiary
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