Girl fights CRMO

Since Alyea was diagnosed with CRMO (a very rare form of bone disease) -she's learned to overcome its daily symptoms of facial pain, swelling and overall body aches...
After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)

Donations (0)

  • Cherry Cottone 
    • $50 
    • 2 mos
  • Anonymous 
    • $100 
    • 4 mos
  • Claudia Zayec  
    • $40 
    • 5 mos
  • Sarah Leclercq 
    • $100 
    • 5 mos
  • Emilia Traficante 
    • $25 
    • 5 mos


Lynda Ro 
Clinton Township, MI
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