Doug and Aunna Gill are parents to a lively, sweet boy name Connor. Connor is a year and a half old and has a challenging health mystery. In May, shortly after he turned one, he began having neurological events that appear similar to seizures.
After several weeks of these, Connor was seen by a team of specialists to assess the situation and prescribed a medication to prevent the episodes. Unfortunately, the medication didn't work to stop the seizures and an MRI and EEG ruled out issues with his heart and brain. Next he underwent genetic testing. The testing concluded that Connor does not have epilepsy, so he had a lumbar puncture to check his spinal fluid. In this time, he continued to have seizures and another EEG. The lumbar puncture eventually led to the discovery of a rare condition called Glut1 that is best treated with a ketogenic diet. The time elapse from the initial seizure to this diagnosis was four months. Four painful months of prayer, two hour commutes one way for hospital visits, the bills that come with those visits, and a whole lot of anxiety for the Gill clan.
For a time, Keto proved to be successful. Even though the diet was complicated at first and increased their monthly grocery expense, sweet little Connor was seizure-free. He began to gain weight and hit developmental milestones. He had occasional seizures, but only when he was sick or if he accidentally consumed sugar.
The peace did not last. A week ago, Connor's seizures started again. Aunna's glucose and ketone readings proved that she was following Connor's diet to the letter. Connor's team of specialists determined it was time to admit Connor to observe his neurological events to uncover the real source since it seems as if Glut1 isn't the concern. He was to be admitted on December 30, but Aunna just reported that Connor had eight seizures in eight days, so his admittance was hastened. This means Aunna and Doug will stay in Memphis at the FedEx house with their youngest daughter while their older two children complete their school week.
I have no idea what this is going to cost them, but the last seven months have been roller coaster for this lovely little family. I know the expense of Christmas may make it harder to contribute to their family needs, but every little bit can help. The Gills are determined to remain in Memphis until they have an answer regarding Connor’s diagnosis so it’s likely they’ll be in the hospital over Christmas and beyond.
The Gills also covet your prayers in this trying time.
You can read the whole saga here:
-A complete, concise diagnosis
-Pray for the team to work and communicate well
-Pray for the older Gill kiddos as they adjust to their parents staying Memphis
-That Aunna and Doug will have rest.
My hope is that this campaign will cover whatever need they have, even if it means the cost of counseling for Aunna and Doug, take out, gas, housing costs, feed Aunna's tea addiction-- you name it, let's do it.
- Craig Lynn