Furthermore, my niece's symptoms have significantly worsened. She has been even more sick since March 2017. Gianna has had several tests and treatments during this battle with PANDAS. One of her last treatments, which was two fusions, cost $13,000. She was at Mass General Hospital for two and a half weeks. She recently came home, but Gianna's mother, my sister, Lanette Arcieri Griffin-Caldeira, has to give her her meds twice a day (through IV). Gianna is also on a feeding tube. She's been on the feeding tube and in a wheelchair for several months now. It is heartbreaking to see a child that was once so filled with light and energy just fade away. She is unable to go to school. She is unable to do the fun things that young teens are usually doing. Her muscle tone is at 30% and she also has had PT come to the house twice a week. She talks in a whisper. And even though Gianna is so weak she still remains positive. As you can tell from the cover photo and photo below, Gianna still is able to smile through all of this.
My sister and Gianna are in and out of the PANDAS ward at Mass General. Gianna's next treatment is going to cost $8,000. Any funds donated will be used for Gianna's treatments and Gianna's medical expenses. Any donation you can offer will help. I have set up my sister, Lanette Arcieri Griffin-Caldeira as the beneficiary. Lanette will be withdrawing the funds.
Thank you in advance for any generosity you can show towards my niece. Any amount you can give is greatly appreciated.
Danielle Arcieri Croto
- Sarah Cannon
- JOHN CROTO
- Michelle Petix
- Sharon Rexford
Organizer and beneficiary
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