Connors journey
Donation protected
After a long hard road we were so excited to learn we were expecting again against the odds. We were nervous going into that first ultrasound but overjoyed when we saw that heartbeat!!
When we were 20 weeks along we learned of a complication with the baby and after a full day in Toronto going between Mount Sinai and Sick Kids hospitals and about 3 hours worth of ultra sound we learned some devastating news. Our little boy was missing a bone in his right leg. It also seemed as tho the leg was short and his foot was small but until he was here there was one way of knowing exactly what we were dealing with.
We had a follow up visit with the orthopaedic dept at Sick Kids about a month later where we learned the condition was called Fibular Hemimeilia. Where basically the fibula doesn't develop and is missing. Again they did not have answers as to what would happen until tol he was born. We decided to just embrace the rest of the pregnancy and be happy... We would deal with what was to come but bottom line... We were having a baby and otherwise was perfectly healthly!
Fast forward a few months and on the morning of January 7th I woke up to find my water had broke... It was time... 4 weeks before we expected but time non the less. After some scary complications during labour and delivery, we welcomed our baby boy into the world at 10:40 that morning and started our second stay in the NICU just as we had 6 years prior with our Alexis. 8 days later we brought our boy home!
February 10th we met again with the orthopaedics department at Sick Kids and met the surgeon. He helped us make the decision to schedule what's called a syme's amputation for our boy. We are waiting on the call of date where his little foot will be amputated and get fitted for a prosthetic.
We have many visits to Toronto ahead of us...over night stays, missed work days and much more to deal with on this journey. We will do what ever it takes for our boy as hard as it will be physically, emotionally, financialy... Anything we have to do so that he will be happy.
Thank you for reading our story!
Link to info on fibular hemimelia
https://en.m.wikipedia.org/wiki/Fibular_hemimelia
When we were 20 weeks along we learned of a complication with the baby and after a full day in Toronto going between Mount Sinai and Sick Kids hospitals and about 3 hours worth of ultra sound we learned some devastating news. Our little boy was missing a bone in his right leg. It also seemed as tho the leg was short and his foot was small but until he was here there was one way of knowing exactly what we were dealing with.
We had a follow up visit with the orthopaedic dept at Sick Kids about a month later where we learned the condition was called Fibular Hemimeilia. Where basically the fibula doesn't develop and is missing. Again they did not have answers as to what would happen until tol he was born. We decided to just embrace the rest of the pregnancy and be happy... We would deal with what was to come but bottom line... We were having a baby and otherwise was perfectly healthly!
Fast forward a few months and on the morning of January 7th I woke up to find my water had broke... It was time... 4 weeks before we expected but time non the less. After some scary complications during labour and delivery, we welcomed our baby boy into the world at 10:40 that morning and started our second stay in the NICU just as we had 6 years prior with our Alexis. 8 days later we brought our boy home!
February 10th we met again with the orthopaedics department at Sick Kids and met the surgeon. He helped us make the decision to schedule what's called a syme's amputation for our boy. We are waiting on the call of date where his little foot will be amputated and get fitted for a prosthetic.
We have many visits to Toronto ahead of us...over night stays, missed work days and much more to deal with on this journey. We will do what ever it takes for our boy as hard as it will be physically, emotionally, financialy... Anything we have to do so that he will be happy.
Thank you for reading our story!
Link to info on fibular hemimelia
https://en.m.wikipedia.org/wiki/Fibular_hemimelia
Organizer
Angela Neill
Organizer
Barrie, ON
