Getting Massaria to her Appointments & Hospital

First and foremost thank you for taking the time to read this. I am making this fundraiser to help get my daughter back and forth from her medical appointments & if need be to the Emergency Room (as it's been happening at least twice a week now).

For the people who do not know my daughters situation she has nonverbal severe autism. A little over a year ago Massaria started to show a lot of self injurious behavior, as well as hurting others. Typically myself when I try to stop her before she can hurt herself. 

This past Monday she ended up having a major meltdown at school. The teachers called me telling me she was banging her head off the floor and she'd hit it so hard it was severely swollen. I got to the school right away (had to call for a ride) and straight to the Emergency Room (9am). She was then sent to UW Children's Emergency and was sedated immediately. They performed CT scans. She has some swelling on the back left side of her head, as well as a concussion. They gave her medications and kept her on observation for awhile. At 11pm I finally got her home. She also started her medication Risperidone.

Tuesday she woke up fine & went to school. I called numerous times checking in only to be told she is okay, just not very interactive. The rest of the night went fine...She was quiet though. Right there was my red flag.

Wednesday morning Massaria woke up and seemed perfect. Full of smiles while getting ready for school. She even skipped down our side walk to her bus. But still all without making any sound. That was definitely off. At 8:45am my phone rings. Little did I know my entire world was about to get flipped. I hear my daughter's teacher on the other end, "Samantha, there is something wrong with Massaria. I sent you a video from my personal cellphone you need to see her. Massaria cannot hold herself up right & keeps falling over". At this point I was confused she seemed fine that morning! Watching the video (i'm trying to figure out how to put it on here) my heart went into a major panic. I had never seen my daughter do anything like it before. Calling a taxi my eldest daughter and I get to the school about 10 minutes later. By this time Massaria is in a wheelchair as she can no longer stand alone and is now a 2 person assist. She looked like she hadn't slept in ages. Completely different from an hour prior when getting on the bus. Getting Massaria into the taxi we went directly to the Emergency Room. The doctor came in and told us after watching the video and speaking with the school and myself as well as going over her previous visit notes he's very concerned.  Massaria who was in my arms began to stare off and her entire body stiffened in my arms. The doctor was checking her eyes then stated he's positive she's having seizures.

MY ENTIRE HEART SANK!! SEIZURES?! MY DAUGHTER?!

At this time Massaria was in a very loopy state. Still in my arms she was falling sideways as if she couldn't bear her weight anymore. The doctor came back in after calling directly to UW Neurology and getting her the soonest appointment Friday. We were directed to bring her home (about 3pm)  & keep a close eye on her. Around 4:30-5:00 she was sitting in my room on my futon eating her crackers when I noticed near her right eye it looked like a muscle spasm. I didn't think anything of it really. Then a few moments later (still in the same spot as she doesn't really move anymore) I see her trying to eat a cracker but the muscles on the right side of her mouth weren't exactly working & she was having a hard time. At that same moment the entire right side of her face locked up, she attempted to stand and her body started shaking as she fell back onto the futon. This went on for about a minute and a half (what felt like a lifetime) when she came to she started to actually cry (she usually pretends to cry or screams) and looked at me which the most terrified look i've ever seen. Just as she started to reach for me her body seized up again causing her to fall back. I then had to call her father who was thankfully close and we rushed her to UW hospital Emergency. 

Teams of Neurologists  came in and were looking at her as well as a few doctors and I cannot count how many nurses. All baffled as to what was going on & trying to figure it out & sadly they still are.

Massaria has been to the hospital and clinics 4 out of 7 days just this week. Typically we have to take a taxi or call for a ride or attempt to borrow a vehicle. I am starting this to see about getting a cheap but reliable vehicle to get my daughter back and forth to her appointments if I can. 

Anything would help. Please and if you could do me one favor...Can you PLEASE just say a prayer for my little girl? She really needs it right now.

Donations

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  • Jodi Hansen 
    • $50 
    • 1 mo
  • Anonymous 
    • $50 
    • 1 mo
  • Deborah Peterson 
    • $25 
    • 1 mo
  • Anonymous 
    • $50 
    • 1 mo
  • Katelyn Colt  
    • $50 
    • 1 mo
See all

Organizer

Samantha Skaife 
Organizer
Portage, WI
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