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Get Jordy and family the help they need!

To raise $15,000 to enable Jordyn Weller to visit a specialist Syngap1 neurologist Dr Ingrid Scheffer in Melbourne from 2020 to 2026 every year until Jordyn turns 18 years old. This includes flights, accommodation and doctors fees. To raise $25,000 for an Autism Assistance Dog and $10,000 for Jordyn to have a   Brisbane    based    Behavioural    Therapist    visit Jordyn within her home environment to assess and provide a Behaviour Support plan and training for Jordyn’s parents followed by block therapy in Brisbane. Summary: Jordyn has a rare disorder called Syngap1. There are 470 people in the world with Syngap1. Jordyn suffers from aggressive behavioural issues, epilepsy, autism, severe anxiety, vision impairment, intellectual impairment, is non verbal and has difficulty walking. Jordyn expresses extreme physical violence towards her family, carers, strangers and doctors. But, worst of all, she hurts herself. She runs into oncoming traffic, bites, scratches and hits herself and bangs her head against walls and floors. This is traumatic for Jordyn, her parents and her 10 year old brother Ethan. During a recent admission to Rockhampton Hospital, Jordyn was mostly sedated for 12 days. The doctors didn't find a solution to manage her behaviour. Jordyn's family were sent home after being told that the Department of Child Safety could not intervene unless Jordyn's parents relinquish care to the State of Queensland. How can this be the best option available under the NDIS? Jordyn's parents want her to get better with them at home with specialist help. Why can't anybody help? Note: Whilst Jordyn is aggressive towards people and things, she loves animals and has never hurt them. An Autism Assistance Dog will help calm Jordyn, distract her and be her companion. We would never allow an Assistance Dog to enter Jordyn's life if there was a risk of her hurting the dog.
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Donations 

  • Amanda Dean
    • $50 
    • 4 yrs
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Fundraising team: TEAM J (2)

Keona Weller
Organizer
Raised $165 from 3 donations
Ironpot QLD
Tavis Weller
Beneficiary
Fiona Young
Team member
Raised $275 from 5 donations
This team raised $9,320 from 58 other donations.

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