Get Grady an online second opinion

Grady has been diagnosed with a rare syndrome. It occurs in less than .6% of conditions of its kind. So in the general population it is even less.  It is called electrical status elipticus in sleep. It means his brain never gets time to rest. He could lose his ability to understand language and stop speaking. He could also slowly lose all his cognitive skills. His IQ can drop. He could revert permanently to the skills of a toddler. Our neurologist has no experience with this and wants to treat it in all the wrong ways. We are trying to get a specialist from Boston Childrens Hospital to get am online opinion. It will cost us 675 and is not covered by insurance. My husband had to take off work for unexpected testing so we have no moneu to spare.

Donations

 See top
  • Leslie Abdallah 
    • $50 
    • 42 mos
  • Anonymous 
    • $20 
    • 42 mos
  • Rose Rudnitski 
    • $500 
    • 42 mos
  • Rose Rudnitski 
    • $300 
    • 42 mos
  • Stephen Rudnitski 
    • $300 
    • 42 mos
See all

Organizer

Snoo Noop 
Organizer
Wallkill, NY
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more