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Hours For Support PLA's

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An Urgent Appeal

In reference to my urgent situation explained here within and below. Until I can secure ongoing funding, I am in need of approximately an additional $2,300.00 per month ($27,600.00 per year.) These funds are needed to cover my attendants’ wages and my employer payroll obligations - E.I. and CPP contributions, WBC contributions, and such.

If you decide to make a financial contribution of support, please know:

* That all gifts received through this site will be considered support to cover attendants wages and payroll requirements only.
* That your gift is most definitely appreciated.

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Here is my current situation:

I am a highly intelligent woman with a physical disability, (Cerebral Palsy) which I've had since birth. I've always considered my disability a gift, as I firmly believe I have lived (and am living) a much fuller life because of it than I would have without it. That's the honest truth. Another truth though is that I now have an extremely urgent need, which I’ll outline here within:

Over the past few years, I found myself having to end my longterm marriage. None the less, from June of 2014 and April 2016, I was forced to continue to share living quarters with my ex-husband because I still needed his physical and financial assistance and no other sufficient support systems were available.

At the end of March of 2016, I was told that a local rent subsidy program, was ending at the end of the same month. Because of this deadline, I was strongly urged to move to my own apartment or not ever get a rent subsidy. The upside of this was that I was finally able to leave a very negative and emotionally toxic living environment. A downside was that this also meant that I had to move before I could secure additional support hours/funding for my attendant needs.

In order to carry out my daily activities, I receive funds from my Nova Scotia provincial government to hire Personal Living Attendants, to assist me. The program I’m on is a very good one, and because of it I am able to live a meaningful life of being both active, and actively involved in my community. I am very active in my community and in my church. I'm also an active participant in the global Theology and Disability conference, (although this year, very regretfully, I was unable to raise enough funds to attend.) In short, because of this program, I am able to be a contributing member of my community by participating in various organizations and such.

Being on this program also allows me to hire attendants of my choosing - ones that I deem are reliable, caring, and ones that I am comfortable with and compatible with. Because of a moderate speech impairment, I feel that this element is extremely important, as not everyone has the patience, or will take the time, to become accustomed to my speech pattern. If this step is not taken, communication can become extremely difficult and frustrating. On the other hand, when one takes this step, communication quickly becomes extremely easy and comfortable.

But the government funds I receive are not enough to fully cover the costs of paying my attendants. If I can't pay my attendants, I won't get the assistance I urgently need. I have requested additional funding, but my request has been denied, twice.

I have been living in my own apartment for three months now. Not only am I doing well, I am starting to thrive! My system of managing my physical needs and my attendants hours is working very nicely. The main problem is that in addition to my regular maximum monthly allotted funds, I have had to use my allotted “emergency/reserve” funds, which are now depleted. Without additional funds, I can not pay my attendants for the additional hours I need. Without these additional hours, I have no means of ensuring that my basic daily needs will be met.

My legal advocate(s) are firmly appealing the denials of government support, but the entire appeal process may take a long time. I am certainly not afraid of a good fight and fair, but in the mean time I need to fully pay my attendants.

I feel it should be (and actually, it is my right, under the UN Treaty for Persons with Disabilities) to live where I want to live. I should not be forced to live in a group home or a chronic care facility just because I need additional funding beyond what my government's policy sets as its maximum funding allotment. I feel that the priority needs to be on the fact that I am extremely capable of making life decisions for myself, conveying all aspects of my various needs, and instructing those who assist me on how best to do so, - i.e. I self direct my needs. I do not believe that my physical needs, nor the number of hours I need for assistance, should be the determining criteria in evaluating whether or not I can live where I choose to live. Neither should my number of needed assisted hours be viewed as a matter of my "not being safely maintained in the community", as one person has suggested. I am not an object to be maintained. I am a physically disabled adult woman with fully functioning mental faculties, who just needs additional attendant hours/funding, in order to lead an active and meaningful life within the community. My need of additional hours/funding should be highly supported.

I have also known people who have required much more assistance than I do and who have acquired the assistance they needed to live in an apartment or house of their own choosing. Although they live/lived in other provinces, one's disability should not dictate the province that one has to live in either. That as well, should be a choice - my choice. Even if I were willing to live in such a facility, which I'm most certainly not willing to do, the wait list to get into such a place is 2 to 3 years.

My ultimate goal is to find employment or some type of self-generated income, however both options are a tough challenge in my circumstances, especially when having to live with the fear of not being able to get the assistance I need.

So, this is my story. As I said, I would greatly appreciate any financial help, and/or realistic job opportunity that anyone can provide.

Note: Any persons in Halifax who might be interested in volunteering some of your time, please visit my website: www.written-in-faith.net and e-mail me after you review the details.

Thank you.

Sincerely,

Gerianne Beatrice Hull (Miss)

Organizer

Gerianne Beatrice Hull Bullen
Organizer
Halifax, NS

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