Isaac's Fund

**Please note-Unfortunately, Skyline Kiwanis is no longer able to accept tax deductible donations for Isaac. If donations are sent to Skyline Kiwanis, they will be returned to the sender. We thank Skyline Kiwanis for their support!

Thank you for visiting our fundraising page. I have created this page in hopes of raising funds for my nephew- 9 year old Isaac Crane and the care and support he and his family will need in the coming months and years. Roger Boostrom is listed as the beneficiary because he maintains the account that donations are deposited in for Isaac. Isaac was diagnosed with Spinal Muscular Atrophy Type 1 (SMA 1) in June, 2014. I initially started this page within days of Isaac's diagnosis. We were told he may have months or a year. But Isaac has continued to beat the odds doctors laid out for Jenna and Jeremiah. The donations the family has received through this page have been a godsend, allowing Jenna and Jeremiah to focus on Isaac and his big sister, Natalie. In the beginning we were focused on simple day to day living. Jeremiah, Jenna, Natalie and Isaac were able to move back into the house in June, 2020 after a yearlong construction project to make the house accessible for Isaac. Jeremiah did much of the work himself because of his construction background. Isaac now has a fully accessible bathroom and an elevator to safely transport him to the second floor and his bedroom! Thank you to the Longmont Times-Call for the article on the Crane Family! https://www.timescall.com/2020/01/05/mead-family-building-new-home-for-son-fighting-genetic-disease/

On Tuesday, June 10, 2014 Isaac suffered an unresponsive episode. His daddy, Jeremiah, revived him. My sister, Jenna, and Jeremiah took Isaac to Children's Hospital where he was diagnosed with Aspiration Pneumonia. Testing began to find the cause of Isaac's low muscle tone, present since birth. On Monday, June 16, 2014 Jenna and Jeremiah were given the devastating news that Isaac has Spinal Muscular Atrophy Type 1. His muscles will continue to atrophy until he passes away. His parents were told he has a few months, possibly a year. The doctors say he is on the weaker end of Type 1, which is most severe. Isaac was hospitalized again in September, 2014 with aspiration pneumonia and viruses. He fought through them and came home. He had a permanent feeding button placed in his stomach in December to eliminate the tube feedings through his nose. He continues to be a happy, brave little boy-always ready with a smile for anyone who is near. He faced another hospitalization in September, 2015, but fought through it with his lion's courage.  In November, 2016, Isaac began receiving Spinraza-a miracle drug injected into the spine that stops the progression of SMA and has even given him small movements and the ability to move his thumbs enabling him to control his powerchair and sit in a more upright position. To date, Isaac has had eighteen injections.  At 9 years old, Isaac has already surpassed the dire predictions given by doctors at the time of his diagnosis. This is a miracle and we are truly grateful for the prayers and support Isaac and family have received this past year! He is now in 4th grade! But day-to-day life continues-bills, groceries, housework, etc. Any amount you are able to donate will be greatly appreciated! Any prayers you can send Isaac, Natalie, Jenna and Jeremiah's way are definitely needed. For more information on SMA please visit www.fsma.org