Funeral costs and expenses for baby Sebastian
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Hi everyone, I am fundraising to help my brother and his family with additional funeral costs for my beautiful nephew Sebastian.
Sebastian was born prematurely at 28 weeks on 16th December 2020. He suffered early on from chronic lung disease and a pda in his heart. He had pulmonary hypertension and pulmonary vein stenosis meaning he had multiple heart surgeries. He suffered from Gastro-oesophageal reflux disease which meant he could only have feeds through a Nasojejunal tube. The severity of his chronic lung disease meant he could never breath unaided and due to his pulmonary vein stenosis (the narrowing of the veins feeding oxygen to his heart) the amount of oxygen he needed constantly fluctuated from being fully ventilated and medically sedated (paralysed) to low flow oxygen of about 0.5 litres. He was born in Hull infirmary and spent time in Grimsby neonatal before being transported between Leeds and Sheffield children's hospitals on several occasions. He managed to come home for 4 weeks and 2 days during his life. The rest of his time was spent in and out of PICU and HDU in Leeds and Sheffield children's hospital and a lengthy spell in Grimsby's rainforest. Sebastian was rushed to hospital 5 weeks ago from home where his stenosis had deteriorated to the point his oxygen level and saturation where no longer sustainable. He was transferred to Leeds PICU the following day where he had a dilation procedure carried out on his pulmonary veins. Unfortunately during this procedure there where multiple complications which led to a bleed onto his left lung and an internal tear. They struggled to remove the fluid from his lungs over the next 5 weeks whilst he remained fully ventilated and paralysed the lung partially collapsed and he was septic this quickly progressed and lead to severe kidney failure and he suffered multiple cardiac arrests. Sebastian died in his mother's arms in Leeds children's hospital on Monday 8th November.
We would be so grateful if you could donate and support the family to help give baby Sebastian the send off and headstone he deserves.
Thank you
Sebastian was born prematurely at 28 weeks on 16th December 2020. He suffered early on from chronic lung disease and a pda in his heart. He had pulmonary hypertension and pulmonary vein stenosis meaning he had multiple heart surgeries. He suffered from Gastro-oesophageal reflux disease which meant he could only have feeds through a Nasojejunal tube. The severity of his chronic lung disease meant he could never breath unaided and due to his pulmonary vein stenosis (the narrowing of the veins feeding oxygen to his heart) the amount of oxygen he needed constantly fluctuated from being fully ventilated and medically sedated (paralysed) to low flow oxygen of about 0.5 litres. He was born in Hull infirmary and spent time in Grimsby neonatal before being transported between Leeds and Sheffield children's hospitals on several occasions. He managed to come home for 4 weeks and 2 days during his life. The rest of his time was spent in and out of PICU and HDU in Leeds and Sheffield children's hospital and a lengthy spell in Grimsby's rainforest. Sebastian was rushed to hospital 5 weeks ago from home where his stenosis had deteriorated to the point his oxygen level and saturation where no longer sustainable. He was transferred to Leeds PICU the following day where he had a dilation procedure carried out on his pulmonary veins. Unfortunately during this procedure there where multiple complications which led to a bleed onto his left lung and an internal tear. They struggled to remove the fluid from his lungs over the next 5 weeks whilst he remained fully ventilated and paralysed the lung partially collapsed and he was septic this quickly progressed and lead to severe kidney failure and he suffered multiple cardiac arrests. Sebastian died in his mother's arms in Leeds children's hospital on Monday 8th November.
We would be so grateful if you could donate and support the family to help give baby Sebastian the send off and headstone he deserves.
Thank you
Organizer
Gemma Chittock
Organizer
