Funds to reshape our baby boys deformed head

Our baby boy, Isaac, is 10 months old and has developed a deformity on the side and back of his head, known as
plagiocephaly.

Plagiocephaly is a condition that affects the skull, making the back or side of a baby’s head appear flattened. It may also involve bulging of the forehead, fullness of the cheek, facial asymmetry and ear misalignment on the same side as the flattening.

We have taken Isaac for an assessment to determine the severity of his condition. During the assessment it was determined that he has a severe case.

If left untreated this could lead to developmental delays and other issues in later life including:

- problems on a daily basis with wearing glasses due to misalignment of the ears,

- inability to wear protective headgear such as helmets for cycling/other sports or hard hats for work, and

- psychological trauma and distress from looking different to others and potential bullying from other children in school. This could effect Isaac's self esteem, confidence and his sense of worth in adulthood. Low self-esteem and a lack of confidence in appearance could have a significant impact on Isaac's ability to socialise.

51712608_1601995916595064_r.jpeg Isaac's head with severe plagiocephaly at 10 months old without treatment.

51712608_1601996546777832_r.jpegAnother child's head, with severe plagiocephaly as a baby (left) and later in life as a child left untreated (right).

As parents we want to give Isaac the best start in life and ensure he doesn't go onto develop problems in later life because of this deformity.

Sadly the NHS doesn't currently cover the costs for treatment.

The good news is that his condition can be easily fixed by fitting him with a special helmet that helps to realign the bones in his head and allow his brain to develop normally.

Isaac would need to wear the helmet for up to 6 months for treatment to be effective. The bones in babies heads are still maliable up to 14-18 months old, after which the bones fuse and it is impossible to change the deformity. This means we have a short window of time to treat Isaac's condition.

51712608_1601998112187564_r.jpegA baby undergoing helmet therapy for plagiocephaly.

51712608_1601998722922334_r.jpegHere you can see the difference in this babies headshape, before and after treatment.

Unfortunately, this treatment is very expensive and we currently dont have the funds to pay for what Isaac needs.

I Yasmin, Isaac's mum, also have severe CFS/ME and am currently bedbound and unable to look after Isaac on a daily basis or work to earn money for the family. Giles, Isaac's dad, is desperately trying to hold down his job and care for both of us whilst supporting us financially. We currently have extremly high childcare costs since I can't look after Isaac and Giles is working. This is already really expensive for us and we are under huge financial strain.

We simply dont have any extra money to pay for Isaac's treatment.

Please, consider donating whatever you can to help us give Isaac the best start in life.

Donations

  • Leanne Marquis 
    • £20 
    • 1 mo

Organizer

Yasmin Rosales 
Organizer
Bristol, South West England, United Kingdom

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