Cooper was born with a syndrome called Pierre robin sequence, along with an ASD (a small hole in the heart) a twisted bowel and GORD. He spent the first 2 months of his life in hospitals, having numerous investigation and interventions done to try and get him to a stable position where he could be allowed to finally come home to me, my wife and our other three children.
Me and my wife spent weeks upon end medically training and before we knew it he was home... But little did we know this was the start of a very steep downhill slide for his health. He deteriorated week by week until he could no longer breath whilst lying on his back. So for several weeks we had no option but to leave him lying on his front. Eventually bch did two operations one being a tracheostomy which finally meant he could go onto his back! But unfortunately all this time in hospital and being left lying on his front has meant that he is slightly behind on his development. He has had a gastrostomy operation to help improve his very poor weight gain, but now we need to purchase a tumble form chair. Due to him not developing at the right levels at almost 7 months old he still cannot sit unaided and when sitting in the usual baby equipment he's leaning to one side which in time is going to have poor effects on his spine and the development specialist has warned me if we don't correct this soon he is going to require further surgery later on in life to correct a twist in his spine.
We never ever ask for hand outs. We are a family of six and we have always provided for our children, but due to covid and Christmas along with general expenses of having four children we need a little help to buy our amazing little boy a tumble form before it's to late!!
So please donate what you can. Thank you for reading xx
- Nav Sehra
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