Missy has been in and out of doctors’ offices due to her weakened immune system and her developmental growth delays since a young age. In early 2017, her doctor ordered several genetic tests and by the summer, Missy was diagnosed with Turner Syndrome.
Turner syndrome is a rare chromosomal genetic condition that occurs in 1 out of every 2,000-4,000 females, but about 99% of affected babies are miscarried or stillborn. It is a miracle that Missy is here and now we want to make sure her family can support the medical costs that are not covered by the family's insurance. Since the diagnosis, Missy has met with specialists and counselors to help guide her and her family through this life-changing diagnosis. Missy is seeing an Endocrinologist four times a year, she must take nightly injections of human growth hormones (she's already grown 5 inches!). In addition, she meets with a Counselor and an Occupational Therapist once a week to help with her social anxiety and to learn how to be more productive at school & at home.
She is on a strict diet since she is at higher risk of diabetes & high cholesterol. There are other medical symptoms that may occur as she ages. There is no cure for Turner Syndrome.
Missy's family and friends are relieved to finally have answers and know she is getting the help she needs.
However, due to the testing, specialist visits, and associated costs, Missy's mother is struggling to support the family with the increase in medical bills, some of which are not covered by insurance. She is taking more time away from her daughter to make ends meet. This fundraiser is to assist the family with the additional medical expenses.
If you would like to learn more about Turner Syndrome and want to help fund research and more, please visit The Turner Syndrome Society of United States Organization
Thank you for your kind donation! If you can't make a financial donation, please consider sharing our fundraiser amongst your friends and family.
- Jime Pates
- Chicken Butt
- Colin Brown
- Mark Drury
Organizer and beneficiary
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