<div>Many know Thea’s story &amp; have helped her get to Dr. Feldman at the Paley Institute in West Palm Beach, Florida for a consultation. That trip seemed out of reach at first until we had kind hearts come together with their generous donations &amp; it was soon a reality.
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<div>We are now hoping to make a trip back there for her to be operated on by Dr.Feldman a reality. But we need some help doing so.
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<div>For those who have not heard of Thea’s story.. Thea was born with a genetic condition called Larsen’s Syndrome. Neither her dad or I have the gene for Larsens, therefore it was a mutation that happened before 10 weeks gestation. There were a few signs when I was pregnant looking back but everything always seemed to check out just fine. She was in the NICU for 3 weeks after she was born &amp; received her diagnosis of Larsens within a few days of being there.
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<div><strong>Larsens Syndrome</strong> is a rare genetic disorder caused by mutations in filamin B and carbohydrate sulfotransferase 3 deficiency, that presents with characteristic findings of ligamentous hyperlaxity, abnormal facial features, cervical kyphosis, and multiple joint dislocations (information from orthobullets.com)
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<div>The way this syndrome presents in Thea is dislocations in both knees, clubbed feet (currently being corrected), tethered spinal cord, laryngomalacia &amp; facial characteristics.
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<div>Thea was seen by Dr. Feldman, an orthopedic surgeon that specializes in Larsen’s in June. We raised money to get her there because our insurance is not in network &amp; all medical appointments must be paid in full, prior to the appointment.
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<div>Now we are praying &amp; hoping to raise money for her to have her knees operated on by Dr. Feldman. We were quoted $45,000 out of pocket (with a self pay discount). $10,000 of that is due at the time of booking the surgery &amp; the remaining balance of $35,000 is due in full a month before the procedure.
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<div>We held a benefit for Thea with the help of friends, family &amp; those in the community in September &amp; raised $8500 which is an amazing start but we need a lot more for the surgery.
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<div>* I do want to add that we are very close to having the deposit covered but will need help with the two-three weeks we are taking off work to be in Florida for the surgery plus travel &amp; extra medical cost we may run into (she has to have a pre op &amp; post up app there which will be done a few days in between the surgery). Which is why the goal is set to $45k. It’s been so hard to save but we are doing our best. We also spent $500 of the fundraiser money for a video consultation with paley two weeks ago (they said we had to have this consultation before they’d give us an estimate) frustrating but they have been very cut &amp; dry about the cost of things. *
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<div>Thea is currently seen at Cincinnati Children’s by quite a few different teams. They are a great hospital. However, they do not specialize in Larsen’s Syndrome. Larsen’s is a very complex disorder. A bilateral knee surgery seems kind of simple, almost like a cosmetic procedure but to Thea it’s between her walking or not walking… as her parents, it’s serious to us.
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<div>We very much prefer a surgeon who specializes in her condition &amp; is confident that he knows what to do for her.
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<div>We understand whole heartedly how big of an ask this is. Our friends &amp; family have already done so much for us &amp; Thea. We need this to reach a much bigger audience. If you cannot donate, please pray that God will find a way &amp; share this with your family &amp; friends.
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<div>Thank you so much for helping our Thea.
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Rachel Campbell

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William Wade

Todd Huff

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Darian Hall

Carrie Brush

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Lauren Huesman

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Diana Trabel

Fund Thea’s Life-Changing Knee Surgery

Fund Thea’s Life-Changing Knee Surgery

Still $21,105 to go. Help us build momentum.