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Fund a high low chair for Annabelle

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Annabelle is seven years old and has been having seizures since she was 14 months of age. Her seizure activity progressively got worse over the years. Annabelle has been diagnosed with autism at 22 months. She could walk, climb and run as well she was learning day-to-day living experiences through ABA therapy. However, at the age of four, she had a massive regression of cognitive, physical and everyday life skills such as self-feeding. Her epilepsy went out of control with her having multiple different types of seizures and having multiple seizures daily. Not all of her seizures can be controlled with medication. For the last three years, she has continued to regress physically. She walks with a gait and can not climb into bed or the car. She also can not stand up from the floor if she is sitting. Also, she has lost the use of her hands as well as being able to feed herself and chew food. She has been diagnosed with Lennox-gastuat syndrome which is a service form of epilepsy as well as having a gene mutation of the SXTBP1 which the gene mutation can cause global developmental delay, cognitive impairment and autism. Unfortunately for Annabelle, we are still unsure of why she is regressing physically. The reason we need a high low chair for Annabelle is the chair can support her in many different ways. Annabelle cannot sit on a regular chair as she can fall off if not strapped in. I have to feed her on a little chair while I am sitting on the couch holding her with my legs wrapped around the chair. Having the high low chair will enable Annabelle to sit at the dining room table with the rest of the family for meals. The chair has wheels with means I can transport her through the house when she is not well and unbalanced with her walking. Also, I can take her outside to our deck so we can have summer meals. Furthermore, this chair can be laid down if she falls asleep in it. This is very handy as at night she falls asleep out in the lounge room and either my husband or I have to carry her to bed, having the chair will help us with a potential back injury as we can wheel her to bed. Annabelle physical regression is taking its toll, and the chair is becoming an urgent need for our family. 

If you could support my GoFundMe by making a donation and then sharing it with your network, I would greatly appreciate it. I know that money can be tight, so please know that ever $5 helps me get closer to Annabelle chair goal! Let me know if you have any questions and I'll be happy to answer them.

Donations 

  • Cooms White
    • $10 
    • 3 yrs

Organizer

Katrina Paton
Organizer
Waikato

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