Amanda's Cervical Fusion Surgery
Donation protected
DONATION AMOUNT WAS LOWERED/TO REFLECT A "MET" GOAL- as our gaming marathon exceeded our expectations! The Go Fund Me page is closing, and most of my personal info is being removed for privacy reasons. Please follow me on my YouTube Channel or Instagram for the latest updates.
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Why are we fundraising for Amanda?
Amanda was diagnosed with Atlantoaxial instability (AAI= excessive movement of C1/C2) https://youtu.be/MLhcA6Ngrmc and Cranial Cervical instability (CCI=is increased mobility at the cranial cervical junction). https://youtu.be/JsZVJi_nnaI These conditions are largely attributed to the cervical ligaments that have failed (stretched too much over time), also likely as a result of her Ehlers Danlos syndrome, Hyper-mobility type.
Insurance is expected to cover a large portion of expenses (out of network) however there will still be vast co-pays and an approximate 3 week out of state (16+ hours away from home) surgery anticipated. THE EXACT AMOUNT NEEDED 1 WEEK PRIOR TO SURGERY IS $8840. Surgery was booked for March 31st 2020 and postponed after the COVID-19 pandemic hit. New surgery date TBD.
Amanda's symptoms have been progressing & her surgeon has recommended a C1/C2 cervical fusion at this time. The type of fusion could change (or require more) in the future, but as of now, we are hoping to NOT fuse C-0 (the skull) in order to keep some additional range of motion after the fusion. The C1/C2 cranial cervical fusion surgery is needed desperately because her spinal cord is being compressed and causing several unpleasant /life altering neurological symptoms. Amanda's surgeon believes her vagus nerve is also being compressed due to the instability. A good video explanation can be viewed here (Note: Amanda is not a candidate for prolotherapy or stem cell therapy at this time.) https://youtu.be/sIUBBCtl6aU
We will open a new go fund me or new pages for any new surgeries or unrelated tasks. Please reach out to us personally to follow our journey. Thank you again to everyone who helped us meet our goal! God Bless. #zebrastrong
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Why are we fundraising for Amanda?
Amanda was diagnosed with Atlantoaxial instability (AAI= excessive movement of C1/C2) https://youtu.be/MLhcA6Ngrmc and Cranial Cervical instability (CCI=is increased mobility at the cranial cervical junction). https://youtu.be/JsZVJi_nnaI These conditions are largely attributed to the cervical ligaments that have failed (stretched too much over time), also likely as a result of her Ehlers Danlos syndrome, Hyper-mobility type.
Insurance is expected to cover a large portion of expenses (out of network) however there will still be vast co-pays and an approximate 3 week out of state (16+ hours away from home) surgery anticipated. THE EXACT AMOUNT NEEDED 1 WEEK PRIOR TO SURGERY IS $8840. Surgery was booked for March 31st 2020 and postponed after the COVID-19 pandemic hit. New surgery date TBD.
Amanda's symptoms have been progressing & her surgeon has recommended a C1/C2 cervical fusion at this time. The type of fusion could change (or require more) in the future, but as of now, we are hoping to NOT fuse C-0 (the skull) in order to keep some additional range of motion after the fusion. The C1/C2 cranial cervical fusion surgery is needed desperately because her spinal cord is being compressed and causing several unpleasant /life altering neurological symptoms. Amanda's surgeon believes her vagus nerve is also being compressed due to the instability. A good video explanation can be viewed here (Note: Amanda is not a candidate for prolotherapy or stem cell therapy at this time.) https://youtu.be/sIUBBCtl6aU
We will open a new go fund me or new pages for any new surgeries or unrelated tasks. Please reach out to us personally to follow our journey. Thank you again to everyone who helped us meet our goal! God Bless. #zebrastrong
Organizer
Amanda Mroz
Organizer
Altamonte Springs, FL
