Meet Fraser Simmonds. He is 8 years old and lives in Billericay, Essex with his Mummy, Daddy and big sister April. He is the happiest and liveliest little boy you could ever meet with an infectious smile, a wicked sense of humour and a zest for life like no other! He's bright, articulate, polite and a dinosaur expert. He loves school and playing with his friends.
Oh, and he happens to be a fulltime wheelchair user.
Fraser has Duchenne muscular dystrophy (DMD), a rare genetic muscle wasting condition affecting around 2,500 people in the UK, the vast majority being male. Parents are told the devastating news that the life expectancy of their child is around 30 years - the worst news you could ever expect to hear. DMD severely affects quality of life and eventually all of the muscles in the body will stop working. Ventilation is needed to assist with breathing and death usually occurs from heart failure. DMD can affect any family of any race or geographical location - it could have happened to your son, your brother, your cousin - but it happened to Fraser.
Since Fraser's diagnosis, his parents have thrown themselves into fundraising for charity, tirelessly campaigning and advocating for the condition, all of which has selflessly been on a voluntary basis.
But alongside the work they do for others, they need some help too. Fraser needs an accessible, inclusive and happy home - a downstairs bedroom with ceiling track hoist and profiling bed, a wet room with a roll-in shower, changing bench and height adjustable sink, and a level access outside space to play in his wheelchair and enjoy his garden - can you help us to help him?
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- Lisa Read
- Cath Chequers
- Nicola Hodge