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Hello, My name is Lydia Glasgow.
I have a rare condition called Ehlers Danlos Syndrome. Ehlers-Danlos Syndrome (EDS) is a rare inherited condition that affects connective tissue. I have issues with my back, hips, and joints and am in constant pain. It has gotten to the point where is hard to do a lot of the things I enjoy.
I have been to many different doctors and since this condition is so rare, there are not a lot of doctors who are familiar with EDS therefore don't know how to manage my symptoms. None of these doctors I've been to have been able to help me. There is no cure for EDS but it can be managed.
I got accepted to be seen at a clinic that specializes in patients with EDS in Phoenix but it is cash pay only and is very pricey. Being a newly wed and trying to balance finances, we can not afford that at this time. I would really like to get an appointment there and hopefully find some answers on what we can do to manage my pain.
I would really appreciate any and all support I can get. Thank you for your consideration. This means the world to me and my family.
Organizer
Lydia Glasgow
Organizer
Gilbert, AZ