Brinley’s funeral expenses
Donation protected
We are trying to raise funds for travel expenses, living expenses and every day essentials. Our daughter Brinley is 18 months old and has Trisomy 13. Trisomy 13 is a genetic disorder meaning she has an extra 13th chromosome and it causes various health issues.
Brinleh has a trach, she’s on a vent 24/7, she is gtube feed and uses a pulse ox monitor 24/7.
She has a pretty severe heart defect that she was born with. She has three holes in her heart. A VSD, PDA, PFO and DORV. These holes are causing significant issues for brinleys health. She’s needing a full heart repair. Open heart surgery is the only way to help my sweet girl to start getting better and give her a better quality and quantity of life.
Most children with Trisomy 13 are deemed incompatible with life and don’t expect to make it to a year. Brinley made it. She made that 10%. Now, she needs this LIFE SAVING heart surgery.
Woth our this surgery her sweet life will be shortened. So my family needs help.
I will be flying with Brinley from Mississippi to Omaha Nebraska hopefully with in the next week.
Shes currently in the hospital due to a cold that almost took her life because her broken little heart can’t handle colds like me or you.
Her daddy will Ben traveling back and forth with her brother as well to visit with us. We need help with the travel expenses so her family can be here with her during this amazing time.
One doctor that has hope in my baby. He wants to help her. She sees her worth. We were denied heart surgery where we are due to she has Trisomy 13. That was the only reason.
If you can please help our sweet warrior little girl any amount helps! We accept prayers as well. God is the only reason she’s still here and He is using her to spread His word. We are her voice and we have to speak up and get her the care she needs to have a fulfilling life.
Shes such a happy sweet baby that only knows love just needs her little broke heart fixed.
You can follow her page
brinley Rae’s journey with Trisomy 13
thank you so much
Brinleh has a trach, she’s on a vent 24/7, she is gtube feed and uses a pulse ox monitor 24/7.
She has a pretty severe heart defect that she was born with. She has three holes in her heart. A VSD, PDA, PFO and DORV. These holes are causing significant issues for brinleys health. She’s needing a full heart repair. Open heart surgery is the only way to help my sweet girl to start getting better and give her a better quality and quantity of life.
Most children with Trisomy 13 are deemed incompatible with life and don’t expect to make it to a year. Brinley made it. She made that 10%. Now, she needs this LIFE SAVING heart surgery.
Woth our this surgery her sweet life will be shortened. So my family needs help.
I will be flying with Brinley from Mississippi to Omaha Nebraska hopefully with in the next week.
Shes currently in the hospital due to a cold that almost took her life because her broken little heart can’t handle colds like me or you.
Her daddy will Ben traveling back and forth with her brother as well to visit with us. We need help with the travel expenses so her family can be here with her during this amazing time.
One doctor that has hope in my baby. He wants to help her. She sees her worth. We were denied heart surgery where we are due to she has Trisomy 13. That was the only reason.
If you can please help our sweet warrior little girl any amount helps! We accept prayers as well. God is the only reason she’s still here and He is using her to spread His word. We are her voice and we have to speak up and get her the care she needs to have a fulfilling life.
Shes such a happy sweet baby that only knows love just needs her little broke heart fixed.
You can follow her page
brinley Rae’s journey with Trisomy 13
thank you so much
Organizer
Cherie Holt
Organizer
Jackson, MS
