This is a little bit about mold toxicity and what I have been battling from daily for some time now. On top of this I struggle with Lyme disease, Mast cell activation syndrome and POTS to name a few things. It took me sometime to decide to make a go fund me as I know everyone is struggling in this time.
Mold illness is a common co-condition in people with Lyme disease, but the medical community has generally underappreciated its effects upon the brain and immune system. Mold affects the body in the same way as the bacterial infections. It’s toxins stick to the surface of the cells and are absorbed into the cells, where they cause inflammation and cellular dysfunction.
The organs and systems that are most affected by mold are the self-regulating systems of the brain and nervous system, as well as the endocrine, gastrointestinal and immune systems. Lyme and mold affect the immune system in the same way, and when one of these conditions is present in the body, the body becomes more susceptible to the other.
Mold toxicity is important for people with Lyme and their doctors to understand because it can cause serious illness and compromise recovery from Lyme.
A healthy immune system and body that are not genetically susceptible to mold are designed to “zap” the mold upon its entry into the body so that it cannot colonize there, but in certain immune-compromised people, it is able to colonize. Once this happens, it’s very hard to dislodge. Once it’s in the body, it produces toxins, called mycotoxins, which inflame the body. Over time, the mold takes over increasingly greater areas of mucous membrane in the body.
In people who are predominantly battling mold toxicity, every day is the same; they struggle to get through the day and have low energy and a mild amount of brain fog. This pattern is fairly consistent. Mold also affects the brain and nervous system, so people with mold illness will have specific neurological symptoms. Neuropathies (damage or problems with the nerves) are common. Symptoms may include numbness or tingling in the hands and feet. Mold toxicity also causes a lot of depression, so when people have a Herxheimer reaction from mold detox (removing cellular mold with toxin binders and other therapies), depression may intensify along with other mold symptoms.
I have lost all foods because of Mast cell activation syndrome and I now have two carry around many forms of emergency meds including Epi pens, Epi inhaler, Benadryl, Zyrtec etc. I am able to toler nothing . My Mast cell symptoms were brought out by mold toxicity to my body(CIRS) as I would call it which is chronic inflammatory response syndrome. And until out of a mold environment (which I can not afford to get out of) My symptoms will continue to worsen and I could lose the four foods I’m able to eat without reactions.
What is Mast Cell Activation Syndrome?
Mast cells, a type of blood cell, play an important role in the body’s immune system. They reside in all body tissues and form part of the body’s initial defence system. Mast cells react to foreign bodies and injury by releasing a variety of potent chemical mediators, such as histamine, when activated. In a healthy person these chemicals will act beneficially to protect and heal the body, but in a person with MCAS these same chemicals are inappropriately triggered and released and have a negative effect on the body. Amongst the triggers are a variety of different foods, exercise, chemicals, fragrances and stress. Many sufferers struggle to identify their triggers and continue to discover new triggers for many years after diagnosis.
I know this is a huge time for struggle for so many people across the world and all I am asking is for any small donations to help me afford the costs of treatment and to hopefully afford to leave a moldy home and heal ASAP.
My costs for mold treatments are around 600 a month or more and that is without the cost of Lyme treatment and supplements. The cost of Mast cell medication is around 300 a month for me or more. I pay out of pocket for a Lyme specialist and now a mold specialist. I would also like to be able to afford a functional MD for my health. This has made me extremely depressed and hard to live my life. I will be turning 30 this year and all I’ve wanted since being diagnosed with Lyme 4 years ago was to go into my 30s knowing I could enjoy the life I have ahead of me.
I have recently been in the er three times in the past week and then was admitted this weekend to Beth Israel and now am admitted to Brigham and women’s. I’ve lost 40 pounds in the past two weeks and keeps dropping within the next few days I am now on a feeding tube. I am scared for my life at his point. I need all the help and prayer I can get. ❤️
Any bit will help me greatly towards moving forward and hopefully healing.
Please help me heal, Thank you So much. ❤️
- Lisa Hoy
- Li-Ting Sudano
- Travers Craven
- Chris Packham
- Stephen Mantia