Surgery

Lia had several diagnoses at birth:
1) Pier Robin syndrome.
2) Arthrogryposis.
3) Varus deformation of the right foot.

This meant that she:
1) Lacks a hard and soft palate and will have to eat through the probe until surgery is possible.
2) Multiple underdevelopments of joints. Daily kinesiotherapy sessions are required for the development of joints, which is very painful.
3) Operation on the foot. At 8 months, 2 operations were performed, on the palate and on the foot. Doctors rejoiced us saying that everything went well. And we only need the services of a speech therapist, 2 years of kinesiotherapy and wear special shoes, including during sleep. Our happiness had no boundaries. We decided that the most difficult is already over, and Lia will grow a healthy, happy child and enjoy childhood.


It's been 3.5 years after the operation, but so far it is very unfortunate that a Happy Childhood has not come yet. Every day her foot deformation is progressing, her food muscles are not developing correctly, which makes it difficult for her to walk and dance that she loves.




Nevertheless, we continue the treatment. She has a very tight schedule every day: speech therapist, kinesiotherapy, classes on stretching the tendons, Voita therapy, and swimming. Half of these procedures cause severe pain. But she doesn't even know how it might be different since she lives with it daily, almost from birth.


Nevertheless, she is Strong, Funny, Caring and Kind.
Lia loves to swim and dance. Her dream is to dance professionally, to stand on the rollers and to go to kindergarten like all her friends do. But, as doctors say, it can become a reality only after two foot surgeries and 4-8 courses of intensive rehabilitation under the constant supervision of the specialists. Unfortunately, throughout this time, we’ve ran out of all of our resources and we would really appreciate your support.
We want to thank all those who were imbued with our history and supported us in difficult times. With deep gratitude - Mom, Dad, Lia and furry sister Sue-Sue.