Colton was born at 36 weeks gestation on April 29th 2017 with multiple life-threatening birth defects, caused by a rare form of CHARGE syndrome (coloboma, heart defect, astresia choanae, growth retardaion, genital abnormalities and ear abnormalities); although, Colton has only been affected by all aspect other than growth retardation and genital abnormalities associated with CHARGE syndrome.
Colton was born not breathing due to atresia choanae (nasal passages blockage). In Colton's short three months, he has ondergone one nasal passage way operation to insert a splint in an attempt to resolve this defect. Followed with another to remove the splint, however, the surgery was unsuccessful and Colton could still not breath unassisted. An additional surgery was performed in a last attempt to widen the nasal passage to enable him to breath, however, he was still unanle to breath unassisted.
Colton was also born with a coloboma on his optic nerve, resulting in him being unable to see. Furthermore, Colton was born with CHARGE ears, resulting in him being unable to hear. Due to this, Colton will have balance issues; thus, he will never be able to walk and will never be able to be independent.
Colton was born with a hearth defect, where the Patent Ductus Arteriousus (PDA) does not close. The heart defect results in blood being pumped into his pulmonary arteries (lungs) leading to further complications with breathing and high chance of multiple infections throughout his life. Colton underwent heart surgery to resolve the issue.
Colton's cochlear nerve in his brain is underdeveloped; this affects the nerves in his neck, resulting in Colton not being able to swallow; thus, will never be able to eat or drink independently. AdditionLly, his brain is unable to process any information due to be extremely underdeveloped.
Due to the server out of Colton's birth defect and the life he would endure, the family have decided to turn the life support off. Due to travelling a 215km round trip daily to be by Colton's side, the family have exhausted their savings. This page has been created to assist the family to fund a funeral for their only child, Colton.
- Rod Scott
- warren Kilcoyne
- Felicity Hoyne
- Kristie Kohari
- JULIE, BRAD, ZARA, MAX & ROSIE SIMS
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