My son Aleks, aged 4, was recently diagnosed with a very rare disease called cholesteatoma. It’s a tissue that grows in his left ear and needs to be removed immediately as later it might cause facial paralysis. We have consulted with four otolaryngologists who suggested that his only treatment is a surgery to be done as soon as possible. Having found out since January of 2019 and till now the end of April 2019, the process of appointments and approval through our health insurance has taken a while. After a research done we were suggested this rare disease could be best treated by the BCH doctors who we found out that all are out of network. So after approving one visit at the BCH otolaryngologist by our insurance, we moved further to follow up with scheduling a surgery with the same doctor, who proved to have treated this so rare disease to this little age successfully and which the earliest slot we found to be available by the end of June 2019. Later we heard by the insurance that they won’t cover the cost of this surgery and if we wanted to follow up we need to pay out of our pockets. Now the amount is huge and I can’t imagine to cover all that amount considering the fact that I might need to stay out of work with no income and watch my son to totally get recovered. The time after surgery is another delicate time that he needs to stay calm and not be active, there is a risk of his eardrum to pop up. So I’m planning in staying with my baby and be there for him till needed. He is prompt to be at risk of the same disease coming back again and he needs to be checked up very often for any other surgery needed. I would highly appreciate your help, prayers and support and thank all of you for any fund donated for my son’s surgery so he can be treated with the best possible treatment that the insurance itself isn’t going to cover. May God bless you all for your kindness and gratitude!