Expenses for Drs appointments

Londyn is 4 months old and has been diagnosed with Spinal Muscular Atrophy Type 1. For those of you who don't know what that is, it's a rare genetic disease that causes the nervous system that goes to your muscles to slowly die off. She currently cannot hold or lift her head, move her legs, sit up or roll over. Babies with SMA1 do not have a lifespan for more than 2 years without treatment. She is eligible for 2 types of treatment but in order for all of the testing and assessments to be done, I have to travel to Shands pediatric specialty clinic in Gainesville. As of right now, we are having to go down once a week until further notice. Londyn cannot attend daycare due to her respiratory system being too susceptible to to severe infections which would mean more stays in the PICU. I am currently having to raise my 3 children as a single mother and with her not being able to go to daycare, being able to keep a job will be near impossible. Our trips to Gainesville usually involves us having to get a room while we are down there. Transportation also becomes an issue as I don't have my own vehicle. If you can donate, at all, please do. If not, keep us in your prayers as we go on this journey with my precious baby girl. 
Thank you,
Karen Wright 
Mother of Londyn Grace Wright

Donations (0)

  • Vineta Garcia  
    • $100 
    • 1 mo
  • Anonymous 
    • $100 
    • 2 mos
  • Amanda Cearns  
    • $40 
    • 5 mos
  • Piper Call 
    • $20 
    • 5 mos
  • Patty Hood 
    • $50 
    • 5 mos
See all

Organizer

Karen Wright 
Organizer
Blountstown, FL
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