Evie’s journey
Donation protected
Evie is not your average 8 year old, she is a typical tomboy
you will rarely find Evie playing with make up, instead your find her on a muddy field in the rain playing rugby. Evie’s weekends are filled with horse riding, swimming, rock climbing or anything That will have any exhausted parents tucked up in bed by 8pm lol.
As you can see Evie has the biggest smile that brightens up anyone’s day, she is a little girl full of life, love & happiness.
many of our family and friends are aware our sister Katie & her husband Phil are living Every parents worst nightmare, they’re family’s life has been turned upside down, unfortunately Kate & Phil’s other 2 children can’t be there with them & are staying with family, in addition to this they are expecting a new baby arriving in a few short months.
on the 12th of April Evie was admitted to Southampton general after she was suffering with reaccuring head aches & sickness. A CT Scan revealed a brain tumour, Evie had a 10 hour operation to remove the tumour but unfortunately it couldn’t be fully removed. biopsies were sent off, & after waiting 7 agonising days Katie & Phil we’re told Evie had stage 4 medulloblastoma that had spread to her spine & is life threatening.
After a week of waiting for oncologists to confirm a plan of treatment, they finally got some positive news.
Before any treatment can start Evie will need to fully recover from her operation,
the operation has left Evie with posterior fossa syndrome, this means she will need extensive rehabilitation with speech & langage & physiotherapy,
Evie has a left side weakness & she is unable to swallow & is being fed via an NG tube.
this has also affected her walking, her motor skills & communication.
Although it’s estimated for treatment to be completed with in 10 months,
The treatment itself will consist firstly to harvest Evie’s blood stem cells to be Given back at a later date, the next stage Evie will be transferred to London for 6 weeks of radiotherapy, this will all be followed by intense chemotherapy at Southampton, this will take a further 5 months. For the next 10 months to a year this will remain as Evie, Katie & Phil’s home, during this time they will be welcoming they’re new baby.
We have set up this page to help with any financial burden that they may find themselves in at this difficult time.
We believe this will dramatically help the whole family, whitch will also include any specialised equipment that Evie may require on her return home & any further treatment.
I will keep this page updated of Evie’s progress
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Update
Update on Evie
Katie and Phil just want to say a massive thank you for everyone’s support and donations, its so overwhelming the kindness everyone has shown.
Evie is being so brave and made the decision to shave her hair yesterday even though it was a hard one , it was coming out in clumps.
Evie has done 13 sessions of radiotherapy and symptoms of sickness and headaches have started today, we know the next few days are going to be hard ones with 17 sessions left as further side affects kick in.
With further test and operation to fit a IV line on Wednesday next week, In case of infection and if her blood count drops, she can receive antibiotics via this tube.
We have a private appointment at Great Ormond Street Hospital, were we will be seeking some alternative therapy to help minimise side affect of this treatment for Evie without all your donations this wouldn’t be possible. Thanks so much from us all xx
We are also hoping to get Evie home in the near future, for a few days before returning back to Southampton for 7-8 months of chemo therapy, again with out all your support and donations this wouldn’t have been possible. UPDATE January 2020 After a year of radiotherapy and chemotherapy, Evie had clear scans and was able to return home. In late November 2020 Evie had a vascular stroke, a side effect of the radiotherapy, and had to spend three weeks back in Southampton General on their neurological ward. But after six weeks of rest, she has now started her a course of neuro-rehab at Chailey Clinical Services in Lewes in the hope it will help her to walk independently again. Any funds received will go towards neuro rehabilitation, and any extra equipment Evie will need going forward in her progress.
you will rarely find Evie playing with make up, instead your find her on a muddy field in the rain playing rugby. Evie’s weekends are filled with horse riding, swimming, rock climbing or anything That will have any exhausted parents tucked up in bed by 8pm lol.
As you can see Evie has the biggest smile that brightens up anyone’s day, she is a little girl full of life, love & happiness.
many of our family and friends are aware our sister Katie & her husband Phil are living Every parents worst nightmare, they’re family’s life has been turned upside down, unfortunately Kate & Phil’s other 2 children can’t be there with them & are staying with family, in addition to this they are expecting a new baby arriving in a few short months.
on the 12th of April Evie was admitted to Southampton general after she was suffering with reaccuring head aches & sickness. A CT Scan revealed a brain tumour, Evie had a 10 hour operation to remove the tumour but unfortunately it couldn’t be fully removed. biopsies were sent off, & after waiting 7 agonising days Katie & Phil we’re told Evie had stage 4 medulloblastoma that had spread to her spine & is life threatening.
After a week of waiting for oncologists to confirm a plan of treatment, they finally got some positive news.
Before any treatment can start Evie will need to fully recover from her operation,
the operation has left Evie with posterior fossa syndrome, this means she will need extensive rehabilitation with speech & langage & physiotherapy,
Evie has a left side weakness & she is unable to swallow & is being fed via an NG tube.
this has also affected her walking, her motor skills & communication.
Although it’s estimated for treatment to be completed with in 10 months,
The treatment itself will consist firstly to harvest Evie’s blood stem cells to be Given back at a later date, the next stage Evie will be transferred to London for 6 weeks of radiotherapy, this will all be followed by intense chemotherapy at Southampton, this will take a further 5 months. For the next 10 months to a year this will remain as Evie, Katie & Phil’s home, during this time they will be welcoming they’re new baby.
We have set up this page to help with any financial burden that they may find themselves in at this difficult time.
We believe this will dramatically help the whole family, whitch will also include any specialised equipment that Evie may require on her return home & any further treatment.
I will keep this page updated of Evie’s progress
.................................
......................................
..........................................
..................................
Update
Update on Evie
Katie and Phil just want to say a massive thank you for everyone’s support and donations, its so overwhelming the kindness everyone has shown.
Evie is being so brave and made the decision to shave her hair yesterday even though it was a hard one , it was coming out in clumps.
Evie has done 13 sessions of radiotherapy and symptoms of sickness and headaches have started today, we know the next few days are going to be hard ones with 17 sessions left as further side affects kick in.
With further test and operation to fit a IV line on Wednesday next week, In case of infection and if her blood count drops, she can receive antibiotics via this tube.
We have a private appointment at Great Ormond Street Hospital, were we will be seeking some alternative therapy to help minimise side affect of this treatment for Evie without all your donations this wouldn’t be possible. Thanks so much from us all xx
We are also hoping to get Evie home in the near future, for a few days before returning back to Southampton for 7-8 months of chemo therapy, again with out all your support and donations this wouldn’t have been possible. UPDATE January 2020 After a year of radiotherapy and chemotherapy, Evie had clear scans and was able to return home. In late November 2020 Evie had a vascular stroke, a side effect of the radiotherapy, and had to spend three weeks back in Southampton General on their neurological ward. But after six weeks of rest, she has now started her a course of neuro-rehab at Chailey Clinical Services in Lewes in the hope it will help her to walk independently again. Any funds received will go towards neuro rehabilitation, and any extra equipment Evie will need going forward in her progress.
Fundraising team: Fundraiser Team (2)
Leah Stewart
Organizer
Katie Orman
Team member
