Hi my Daughter has complex health needs she has ehlers danlos, complex hyper mobility, fibromyalgia and is being investigated for her heart. Her health has been bad since being born prem from placenta previa. Her Physiotherapist and orthortics has requested Esmae-Rose has a wheelchair due to the fact her ankles give way she has dislocations gets tired easily she can’t walk on hard surfaces so grass verges she can’t walk long distance and I can no longer carry her due to my health.
Unfortunately the NHS has declined her referral due to the fact she doesn’t need to use her wheel chair indoors all the time so we are now having to go private and pay we financially cannot afford this and desperately asking for people to help as much as they can anything would help.

