Erin's Battle with Burkitts
This is my 6 year old niece Erin. A few weeks ago, she started having some knee pain and some tummy aches. Numerous visits to the pediatrician lead to an ortho visit and we thought she had Rheumatoid Arthritis. About 2 weeks ago, her stomach issues got worse and she started having trouble getting around. She was referred to an oncologist at Dartmouth Hitchcock Medical Center and immediately admitted. The initial diagnosis looked like leukemia. Erin is a bright, active, spicy 6 year old. She loves to read and play and spend time with her brothers and sisters (She has one 8 year old brother, one 3 year old brother, 1 18 month old sister and a baby brother born a month ago!!)!! Within a few hours, we were told that she has Stage 4 Burkitt's Lymphoma with CNS involvement. During an MRI, they found a very large tumor pressing on her spinal cord. She went directly to the operating room to have the tops of the vertebrae in her back removed and the tumor removed. We didn't even get to see her until she was back in the ICU after her surgery. She immediately had a PICC line placed so that she could begin receive chemo that evening. She has decreased sensation and movement from her mid-back down and is currently in a wheelchair. We are hopeful for recovery from her surgery and chemo from a physical standpoint. She will require extensive rehabilitation to regain the use of her trunk and lower body. She will require frequent hospitalizations in the next 6 months while she undergoes intense chemotherapy. She will lose all of her hair, she will lose her appetite, she will lose her strength. In spite of this, she has not lost her spirit. She continues to fight and show her sassy attitude. This little girl means everything to her mother, father, siblings, aunt and extended family. I am hoping that you will pitch in in any way you can. During treatments, Erin, her mom and newborn brother will be at a hospital 2 hours away from home and the rest of her family. Her father is staying home with her 3 other siblings. At this time, no one can work due to child care. Their home may need to be made handicapped accessible. They may need a new van that can accommodate a wheelchair and other supplies for Erin. Their monthly house hold bills will need to be paid with little to no income. I am trying to go to New Hampshire and visit as frequently as possible. I am attaching Erin's address should you choose to send something directly to her - she loves mail, reading, and anything sparkly!! Dartmouth Hitchcock Medical Center;1 Medical Center Dr.; Erin Mangus Rm 539; Lebanon, NH 03756. Also, please consider checking out Erin's Amazon Wish list: https://www.amazon.com/hz/wishlist/ls/21H2RKEW5KAGS?ref_=wl_share No family should ever have to endure a sick kid. Cancer should not exist. But if I can do anything to alleviate their stresses whether it be by visiting, by providing financial assistance or just lessening their worry about how their going to pay for gas or food or anything they'll need in the future for Erin, I would go to the far ends of the earth. Please consider helping them out! Thank you!!+ Read More
Sorry there hasn't been an update - sometimes life gets away from all of us! Erin has recently been going through a rough patch. Unfortunately, she was recently re-hospitalized with some infections. She has since cleared them and was able to receive her 4th chemo cycle. It appears most of the cancer is gone. Finally, they are working up her knee pain so we should have answers soon. There has been little progress on the moving front but Erin continues to get stronger! That little girl has some diesel muscles! She is home again but home doesn't feel quite the same as before and they continue to adjust to their new normal. That's why it's important to keep sharing, keep praying and keep donating! Thanks for following us!
We hit our goal again....you guys are the best! My sister and Erin are so lucky to have you. But please, let's keep going. Erin is home for now but her journey is still uncertain. While she has regained a lot of feeling and sensation, she still has a long way to go to regain her ability to walk. She keeps working towards it so let's keep going. The chemo is doing its job and things are improved from a cancer standpoint. Happy 4th of July guys! Love Megan, Ginny, Erin and her dad and siblings!
We hit goal!! You know what that means? We raise it! Erin lost her hair this week and that's been a difficult transition. But they may get a weekend at home (first one in a month!) and that will help them to figure out what they need at home. So let's raise their spirits by continuing to donate, pray and share! Thanks everyone!
Guys - we did it! I bumped the goal twice and now we've exceeded it. You know what that means? We keep going!! Erin has to keep going on her battle so let's keep doing what we can to help! Thank you again to everyone who has contributed!! And shared! And prayed!! And got stuff off the wish list!! You really are the best!!