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Erin's Battle with Burkitts

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This is my 6 year old niece Erin. A few weeks ago, she started having some knee pain and some tummy aches. Numerous visits to the pediatrician lead to an ortho visit and we thought she had Rheumatoid Arthritis. About 2 weeks ago, her stomach issues got worse and she started having trouble getting around. She was referred to an oncologist at Dartmouth Hitchcock Medical Center and immediately admitted. The initial diagnosis looked like leukemia. Erin is a bright, active, spicy 6 year old. She loves to read and play and spend time with her brothers and sisters (She has one 8 year old brother, one 3 year old brother, 1 18 month old sister and a baby brother born a month ago!!)!! Within a few hours, we were told that she has Stage 4 Burkitt's Lymphoma with CNS involvement. During an MRI, they found a very large tumor pressing on her spinal cord. She went directly to the operating room to have the tops of the vertebrae in her back removed and the tumor removed. We didn't even get to see her until she was back in the ICU after her surgery. She immediately had a PICC line placed so that she could begin receive chemo that evening. She has decreased sensation and movement from her mid-back down and is currently in a wheelchair. We are hopeful for recovery from her surgery and chemo from a physical standpoint. She will require extensive rehabilitation to regain the use of her trunk and lower body. She will require frequent hospitalizations in the next 6 months while she undergoes intense chemotherapy. She will lose all of her hair, she will lose her appetite, she will lose her strength. In spite of this, she has not lost her spirit. She continues to fight and show her sassy attitude. This little girl means everything to her mother, father, siblings, aunt and extended family. I am hoping that you will pitch in in any way you can. During treatments, Erin, her mom and newborn brother will be at a hospital 2 hours away from home and the rest of her family. Her father is staying home with her 3 other siblings. At this time, no one can work due to child care. Their home may need to be made handicapped accessible. They may need a new van that can accommodate a wheelchair and other supplies for Erin. Their monthly house hold bills will need to be paid with little to no income. I am trying to go to New Hampshire and visit as frequently as possible. I am attaching Erin's address should you choose to send something directly to her - she loves mail, reading, and anything sparkly!! Dartmouth Hitchcock Medical Center;1 Medical Center Dr.; Erin Mangus Rm 539; Lebanon, NH 03756. Also, please consider checking out Erin's Amazon Wish list: https://www.amazon.com/hz/wishlist/ls/21H2RKEW5KAGS?ref_=wl_share No family should ever have to endure a sick kid. Cancer should not exist. But if I can do anything to alleviate their stresses whether it be by visiting, by providing financial assistance or just lessening their worry about how their going to pay for gas or food or anything they'll need in the future for Erin, I would go to the far ends of the earth. Please consider helping them out! Thank you!!

Organizer

Megan Gervais
Organizer
Meriden, CT

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