I am trying to raise funds to help my neice, Simone, cover medical and other unforseen expenses related to her son Maxwell's upcoming Craniostynosis surgery.
Here is a brief description of what they face, which I have pilfered from the Facebook Page she created for this major life event:
"During the first year of life, the skull grows super fast to accommodate the growing brain of a baby. The skull is made up of several plates, which are not fused together at first, so as to allow for the quick expansion of the brain. Maxwell is super duper smart (and a super duper pooper, but that's another thing altogether), and his little brain is just growing like a weed. But OH NO! one of the sutures between the plates of his skull has closed up prematurely. This is a birth defect known as Craniosynostosis. One in a couple thousand babies is born with Craniosynostois. Max's version is the most common, and is not associated with any syndrome or genetic disorder. Evidently it sometimes just happens. Max's sagittal suture (you can look this up, if you're so inclined), which runs from front to back down the middle of the skull, has begun to fuse too soon. This means that the skull cannot grow out on each side, but instead is pushed to the front and back. It results in a longer head shape, and sometimes a ridge on the top of the head (as if the suture is saying..."yes, HERE I am"). Max has a little ridge, and he has some "bossing" of the forehead, as well as a lump on the back of his head. So, we've got to do something to help his little brain out. There's just so far to the front and the back that it can grow before causing some unhappy neurological symptoms. Kids with undiagnosed craniosynostosis often end up with horrible headaches, vision problems, speech and language delays, and sometimes global learning delays. Well, we want to do everything we can to give his little brain plenty of room to expand, so our Maxwell is going to have skull surgery September 25th. During the surgery, a strip of his skull over the sagittal suture will be removed to allow for expansion. The doctor will also make several cuts along the sides to further assist the correct development. It is a relatively common procedure with good recovery, but it is still scary. Max will be in a lot of pain for a few days after the procedure, and then hopefully will be back to his normal self shortly thereafter. We created this page to help stay connected with family and friends. I guess it's a sort of online waiting room...or will feature as such next week. You can join us if you choose. It is good to have support, and to stay connected....as a mom i have come to appreciate that more than I ever imagined, especially now."
So please, contribute what you can (even $5 can help!) and if you can't contribute, please share this page.
Love to all my loving lover people! Thank you in advance!
Naomi Wetzel McCoy
DonationsSee top donations
- Heather Moore
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more