Months had passed before they finally got the answer in November of what had happened to their sweet little baby girl. Her heart had failed due to a condition called Dilated Cardiomyopathy. This is a condition in which the heart’s ability to pump blood is decreased because the hearts main pumping chamber is enlarged and weakened. Aria had never shown any signs or symptoms of this condition, so no one ever knew that she had it. How could this have happened so quickly without anyone knowing?
Devastated over the loss of their baby girl, they decided to move to South Carolina for a fresh start. After some time, they considered having another baby, but they worried about the possibility of this happening again. They consulted their doctor and were assured that the condition Aria passed away from was not genetic but caused by a viral strain that attacked her heart. Feeling reassured, they decided to begin trying to get pregnant.
Emmie’s Story Begins
Emilia Claire (Emmie) was due to arrive on July 5th, 2018. There were many different emotions that came over them when they found out they were pregnant with Emmie. The excitement of another child but, also the worry that something could happen to her just like her sister. During the pregnancy Julia found out that she had developed Placenta Previa. This complication is caused when the placenta is positioned low in the uterus and covers the cervix. This could be life threating during pregnancy or even during birth due to excessive bleeding. Complications arose near the end of her pregnancy which resulted in Julia being admitted to the hospital. A C-section was scheduled for the beginning of July just a few days before the actual due date to keep Julia from going into labor on her own. Emmie decided she couldn’t wait for July and Julia went into labor on May 22nd, which was actually her daddy’s birthday. She was born on May 23, 2018 by C-Section weighing in at a 4lb 13 oz.
Due to Emmie being born prematurely she had to spend 3 1/2 weeks in NICU to make sure she was ready to go home. The Doctors had cleared Emmie to go home with no worries but to try and keep her away from a lot of people until her immune system had strengthened. The fears of what happened to Aria were always there, but with caution Emmie was able to met the family, attended her Aunt Morgan’s wedding, and made her first trip to the pumpkin farm.
All the happiness that they had experienced quickly changed on September 25th when Julia noticed Emmie’s breathing was a little off. She called Travis at work freaking out and ended up rushing her to the ER. Travis met them at the hospital and they waited as the Doctors ran some test on Emmie to try and figure out what was going on. A few hours later they received devastating news that Emmie has dilated Cardiomyopathy, just like her Sister. The Doctors believe it to be genetic, and not viral, since both girls were diagnosed with the same condition. The Doctors told Travis and Julia that Emmie needed to be airlifted 2 hours away to MUSC in Charleston SC. They thought they had to be dreaming, how could this be happening again.
Emmie is very sick, and we don’t know exactly what the future holds. She will eventually need a heart transplant, but the doctors are hoping the medicine they are giving her will keep her heart stable long enough for her to get stronger. They now must deal with the stress of how they will afford to stay close to their baby, while trying to deal with the financial stresses they will endure during this long painful journey. This fund is being set up to help ease some of the burden of the medical and household expenses they will incur while Emmie is receiving treatment at MUSC. They want to spend as much time with her as they can because they do not know what is going to happen short or long term. The thought of losing another child is overwhelming. We believe in miracles and thank you for your prayers, love and support at this time. God Bless.
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