Medical Expenses for Emma

Emma starting having seizures at just 5 months old. As parents it scared us,we couldn't do anything to help her. She had another seizure the very next month,the month after that,and then every 2 weeks during the winter. Every time Emma has a seizure she ends up on a breathing machine and in PICU for a few days to a week. Emma finally caught a break in March she had a seizure they adjusted her medicine for what seemed the 100th time and she was seizure free for 2 whole months!! Just 2 days after her 1st birthday she had what we thought was another episode like all the times before......this time was very different. She had a seizure at daycare and they followed everything they could by the book when she has a seizure. This time she ended up having RSV which spiked a high fever rapidly which caused her to seize and when she seized she threw up and inhaled it in both lungs. Due to everything that happened with Emma she ended up being sedated and on last resort breathing machine at TCH West Campus. Our only other option was to transport her to the medical center and Doctors at that time didn't think she would make the transport to be put on ECHMO to attempt to save her life. We were told we hope she makes it but only God knows. She was diagnosed with ARDS which basically means her lungs stopped working. God was always on her side and she defied the odds and pulled through many times when the Doctors didn't think she would. After three long weeks in PICU we were able to go home with our angel. Due to her sensitivity to illness and her lungs continuing to heal from this trama to her tiny body I am unable to work and unable to assist with paying for what insurance doesn't cover. As you know Emma had another seizure 3 weeks after discharge and the Neurologist and Epileptologist need to do a test on her to determine specifically what kind of genetic abnormality is causing her epilepsy and of course the insurance is denying to pay for this $4,000-$8,000 test. Emma needs this test to determine her plan of care and due to my inability to work we are in a bind.

We are asking for any donations,small or big, even a prayer or good vibes are very much appreciated. Y'all don't know how grateful we are for everything! :-)


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Sarah Delgado 
Pasadena, TX
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