Elliots fight for survival

Hi I am a mum of 4 children 2 boys 2 girls on the 15th august this year I unexpectedly gave birth to my son Elliot I didn’t know I was pregnant with Elliot I started with pains around 6.30am phoned and ambulance at 6.45ish and Elliot was born in the back of an ambulance at 7.30am, it then became apparent Elliot has been born with numerous physical conditions, Elliot was taken to Halifax hospital where we was told Elliot wouldn’t make 24 hours at 9 week old he’s still fighting, after birth Elliot was transferred to Leeds general hospital awaiting a bed at Manchester children’s hospital, Elliot reached Manchester children’s hospital 2 days after been born and it was then elliots conditions became apparent to myself and my partner elliots dad. Elliot has been born with a sever condition called cloacal extrophy and bladder extrophy which basically means his bowl and bladder are on the outside, we learnt that elliots abdominal wall never formed properly at around 4/5 weeks gestation in the womb. Elliot will also require one of his legs amputated due to this not forming properly and his right leg will require fixing with casts. Elliot unfortunately will have a stoma for life he will never be able to poo from his bottom as he has no rectum. Elliot underwent his stoma surgery on the 14th September he was doing really well and a week after theatre elliots stomach prolapsed basically his abdominal wall failed which allowed all elliots stomach contents to come out into his nappy this was the second time as a mother I was told I could potentially loose my son, Elliot was rushed to intensive care where they managed to get all his stomach contents back into his nappy on the Tuesday after this happened elliots abdominal wall failed again and all his stomach contents once again were in his nappy, Elliot was rushed to theater to have emergency abdominal wall repair at 5 weeks old. Elliot is now 9 weeks old has undergone 4 trips to theatre and he will have to constantly have trips to theater to repair his stoma fix his bladder at around 8 months old and then finally his leg amputation. 

elliot is 9 weeks old he is fed via his tube he has special fluid called tpn to help him gain weight as his digestive system dosnt work properly and because he’s now has short bowl syndrome and he dosnt digest milk properly. 

elliot is a real fighter and deserves to have the best possible life he can, Elliot hasn’t ever given up so why should we are parents stop fighting for our baby. Elliot is mow 9 weeks old and hasn’t been home yet to meet his siblings or grandparents, Elliot isn’t any closer to home Either I am asking for help to be able to give my son the quality of life he needs but once’s he’s allowed home we wish to spend as much family time as we can and due to elliots unexpected birth and severe complications my partner has had to give up work If anyone can help Elliot and my family we would be forever greatfull. The money raised will pay for travel to and from hospitals and whatever healthcare costs and care he will need and a well deserved holiday for a week for my family to spend some quality time together after 9 weeks and many more to come apart  Thankyou for taking the time to read our story and please share this as much as you possibly can to raise awareness about this condition

Fundraising team (2)

Chelsea Keenan
Ryan Griffiths
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