For the past four months, I've been training for my 6th marathon - super excited to return to the streets of NYC on Sunday, November 7!


 


This year I'm running in support of the National Organization for Rare Disorders (NORD), and for my beloved Uncle George.


 


Over a decade ago, my wonderful uncle was diagnosed with Vasculitis of the Central Nervous System, an incredibly rare disease with no cure - yet. I'm fundraising for NORD so that there are more resources for research into treatment options, and so that other families don't watch this disease take its devastating toll on their loved ones.


 


My Uncle George means the world to me and I already know this will be my most meaningful marathon yet. If you're in any position to donate to this wonderful cause, I would be honored to run 26.2 miles with you in my thoughts.


 


For more on NORD, please read below!


 

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For the 13th consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD). NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. Rare diseases impact the lives of 25-30 million Americans – two-thirds of whom are children. On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease. The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law. NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance. Your support of this campaign is very important to them.

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Elena's Fundraiser for NORD

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