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<div>Update from Me
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<div>Hi everyone —
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<div>I wanted to share a quick update and some gratitude from the bottom of my heart. The past couple of years have been incredibly challenging, and while I wish I could say things are all better now, I want to be real with you — I’m still in the thick of it.
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<div>My SSDI case is still in limbo, and financially, things are beyond tight. I’ve done my best to hold on, but truthfully, I’m struggling. Donations have slowed, and I completely understand — everyone’s feeling the weight of the world right now. But I’m here, doing the inner work, and fighting every single day.
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<div>The intensity of my physical and neurological flares still prevents me from working — even part-time. Believe me, I want to work. I miss being able to contribute and feel independent. But my body and brain are not yet well enough.
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<div>That said, I am making progress.
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<div>Through therapy, ongoing treatment, and deep emotional work, I’m learning how to navigate my conditions and regulate my nervous system in ways I couldn’t before. It’s slow, but it’s real.
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<div>If you’ve supported me — whether through donations, kind words, or simply sharing this — thank you. Every single bit helps me get by, keep my appointments, care for my animals, and hold on to hope.
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<div>If you’re able to give again or share this with someone who might, please know that I don’t take it lightly. It means survival to me.
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<div>With gratitude and hope,Hello yall!!been a bit since I updated. I have been getting over infusions every 3 months for pain I had a POP surgery got my gastroparesis which in turned flared my FND symptoms. I’m trying my best that’s all I can do. Please consider donating I am in desperate need of financial assistance.
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<div>UPDATES! I’m working on gradually getting back to work I still can not drive yet however I’m trying everyone!! Thank you to those who have and continue to support me and my fur babies 
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<div>‍⬛
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<div>And my job DID NOT offer short term disability so I had to apply for SSD which was 5 months ago and they are only partly done on my case to make a decision went from a “healthy” 39 year old vet tech who loves horse back riding (still do) and living loving life! To having to plan my days out due to a neurological disorder called my official diagnosis is Functional Neurological Disorder with multiple symptoms as Dystonia (involuntary movements of muscles and tendons that can be debilitating) there is no known cure and psychogenic non-epileptic seizures My ELECTRIC MEATBALL ⚡️ Each and every case is specific to each individual. FND is a UMBRELLA TERM yes however the fact remains I am not cleared to drive or to return to work for the foreseeable future. I have a lawyer and I have filed for SSD in hopes this is short term. I have also applied for stages benefits. I been denied for cash assistance because I don’t have human children. 
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<div>I am being treated my by PCP and Cleveland Clinic. There is more testing and research to come! The money raised with go to travel expenses to a from my doctors appointments and everyday living expenses. I do not have a second income or a partner to pick up the my part of the bills. I solely rely on myself and occasionally the help of family. However right know I have to ask all of you for just a little bit of help. Just until I land back on my feet. make each day count. #dystoniamovesme #lifesagardendigit 
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<div>Functional neurological disorder 
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<div>On 8/30/23 I went to work like normal around 4pm I started to feel I I threw up then felt better around 430 right before closing time I told my coworker ugh I’m gonna get sick went into the bathroom then the next thing I know I’m scream for Jen then she’s pounding on the door telling me to unlock it I had pass out or had a seizure then had multiple (I was naked covered in vomit at work) I lost control of my bowels an bladder they loaded me up on fluids anti seizure meds and antibiotics potassium at one point I had an iv in each arm with 4 different bags CT was normal blood work was off the charts I went septic now Reynolds only kept me overnight I went home started to feel better still didn’t know what caused it. The following Wednesday night I get an optical migraine it was advised just take something and go to bed. Woke up I felt off it’s like an out of body experience and I have no grasp of time I can stare at the clock and still it’ll had felt like seconds had passed when it was hours. I show up at work around 810am walk in the door well attempted too, I looked at my coworker and my body dropped like a sack of potatoes. My entire body was like curling into itself I however this time I was totally coherent but I couldn’t control my body movements my voice it was seriously something out of the exorcist. They emt want to take me to back to Reynolds I said no is the most inhuman voice wheeling (who didn’t have a neurologist) So my blood work looks better they did an mri around 10am I had another episode and since then the movements don’t really stop. I have an appt next week with Cleveland clinic in the neurology dept. while I was in wheeling hospital they didn’t have a neurologist at all. My MRI showed white matter nonspecific abnormalities 
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<div>I can NOT put it in to words how life has been halted because of this. Just when everything was starting to get amazing this happens. But I do believe what you put into the universe comes back to you and not gonna lie I’ve put some shit out there, this has definitely humbled me and I hope this helps someone else who maybe experiencing something like this and feels alone. 
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Alicia Wills

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