I currently have an LVAD (left ventricular assist device) installed, a tracheotomy and nerve damage in my legs that require me to use braces to walk. The LVAD is an electric pump installed in my heart to circulate the blood in my body. I wear batter packs during the day and I sleep connected to a power outlet at night.
Before my illness got this severe, I worked to provide a good life for my family. I gave back to the community but helping where I could, whether it be just offering friendly advice or things like repairing peoples cars for free when they couldnt afford it.
When I was forced to retire because of my health, I began traveling the country to raise awareness for HoFH (homozygous familial hyperlipidemia) by educating doctors and nurses as to what to look for to diagnose the disease early. It is a rare disease and the lack of awareness of this disease is what led to my heart condition deteriorating as quickly as it did.
I thank you for your time in reading this and I hope you share it. Any help you can give would be a blessing to myself and my family.
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