<div>Eduar received the diagnosis of B-cell ALL (acute lymphoblastic leukemia, type B) on October 29, 2024. As you can imagine, our life changed in a second—my world collapsed, but my faith has kept me strong.
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<div>Eleven months, 106 chemotherapies, 4 reactions—one of them toxicity in the brain due to a reaction to the chemo.
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<div>But everything was going well within the expected parameters of the diagnosis.
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<div>We were already in the final stretch: on October 22, Eduar started pill treatment, no more chemo through the port, and he would only see his oncologist once a month. Then the thing that no parent ever wants for their child happened.
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<div>Edu went to the infusion clinic and received two blood transfusions. That’s when the nightmare began. After the last one, he developed a fever and was admitted with a diagnosis of sepsis, which was controlled with antibiotics.
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<div>After 4 days, he was stable and sent home with treatment, but on the 5th day we returned to the hospital with a fever of 109°F. We rushed to the ER, and he was admitted to the special care unit, where only children with cancer stay.
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<div>They thought it was a virus and treated him, but after 4 days without improvement and with his fever persisting, they began treating him with an antifungal antibiotic. They did contrast imaging, and the results were immediate: a spot in the nose, a spot in the lungs, a spot in the liver, and another in the leg between the hip and thigh.
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<div>Immediately, the ENT team came with all their equipment and did a nasal endoscopy—there was something destructive.
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<div>The next day, he went into surgery. The ENT specialists and pulmonologists worked together, doing their studies. The pulmonologist introduced a contrast liquid, then extracted it through suction, and handed it over to the virologists to determine if it was a virus, bacteria, or fungus.
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<div>But the ENT team discovered fungi in his sinuses—just a small amount, but very dangerous because of its proximity to the eyes and brain.
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<div>He could lose his sight or it could invade his brain. So they scraped the entire sinus area and disinfected it.
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<div>Everything seemed to go well; he was sent back to the ward, but then he had heavy bleeding from the mouth—remnants from the sinus surgery.
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<div>It was terrible, the bleeding wouldn’t stop. He spit blood and huge clots every 5 seconds. That lasted for 24 hours. I couldn’t sleep, terrified that my baby would choke on the blood and those enormous clots.
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<div>Edu had to go to intensive care because of the bleeding. It stopped when the ENT team arrived and placed a nasal plug. You can imagine the pain—they inserted a micro-tube into a syringe, which had a clay-like material to fill inside and stop the bleeding. My poor baby cried, and I felt like I was dying watching him suffer.
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<div>That contained the bleeding, and he returned to the care unit. For this, they had to place a line in his arm because his port was blocked, so he was connected through both arms. On top of that, he needed a lot of medication.
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<div>Today, they took him to the OR to unblock or replace the port, but thank God they were able to unblock it.
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<div>This has been a nightmare for Edu and for me—it’s insane. Everything was fine, and suddenly everything changed completely. I don’t even know what day it is anymore. Edu hasn’t eaten for 6 days and has only sipped water for 2.
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<div>They are treating the fungus with an antifungal antibiotic. We’re still waiting on the lung results—they’re delayed. He has received blood, platelets, and potassium because everything is low. Soon, he will have an MRI to get a clearer picture of what’s happening in the leg.
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<div>And there’s no knowing when we’ll be able to leave the hospital. The fungus is very dangerous and must be treated and monitored in the hospital 24/7.
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<div>Life changes in a second—it’s crazy. So enjoy it, live it, love it as it comes. Say “I love you” more often and hug your family more.
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Ajay Soni

Anonymous

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Eduardo fight cancer

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