Early 2018 Dylan was diagnosed with Myotonic Muscle Dystrophy Type 1
This means that this disease is attacking his core/proximal muscles, making it difficult to walk, stand, drive, swallow, grip even a steering wheel amongst lots of other things. It has also caused him to experience extreme fatigue. Decreasing range of motion and flexibility.
As the disease progresses as it did in his late father he will eventually lose his ability to do the simplest thing as walking. The disease will continue to attack the muscles in his core including the heart and lungs, eventually resulting in organ failure.
Because there is no cure.
The MD which is usually diagnosed in early childhood was not diagnosed until very early this year, 2018! In spite of the fact that he has suffered from early on, from muscle weakness, aches and pains.
Unfortunately, Myotonic Muscle Dystrophy
Type 1 is a degenerative disease, so Dylan’s difficulties with mobility are becoming more pronounced.
If you know Dylan/Tredo’s, they’re taking every step to continue to live a normal life. But knowing now that there are limitations.
Dylans future needs are uncertain and while he does have a job, Being sick has already taken its toll financially. He does not have the funds to fund his foreseeable and unforeseeable medical expenses which include a vary of different medications, therapies and treatments that also involve anesthesia. To prolong his mobility and independence. That is why we are setting up this fundraiser in hopes that he can start eliminating some of the current financial needs/burden and to help with some of his upcoming treatments & travels.
Dylan would and will give you the shirt off of his back. If you have the pleasure of knowing him, you know that he is an amazing, hard working father of 3 year old b/g twins & a 10 year old son. He supports his family and has always been there for his friends and family no questions asked!
This comes with a heavy heart to have to ask, but right now he needs the help.
We are sure that all of you, our family, friends and people who are just now finding out about Dylan’s disease, want to help in any way you can. He’s probably the most private from the family and hasn’t talked about his diagnosis.
Whatever you can give to this fund will be greatly appreciated beyond measure. For those of you unable to contribute now, we understand completely and welcome your prayers and warm wishes.
However you reach out to Dylan, we’re sure it will help him continue to be strong! And very much appreciated during this difficult time and times to come.
All that is raised will go to the overwhelming amount of medical bills, copays, medication, medical treatments and travel.
Thank you for taking the time to read his story and considering to help.
Please Share Dylan’s story and help to raise awareness of Muscle Dystrophy.
We are strong and determined for Dylan!
From the bottom of our hearts, Thank you!
DonationsSee top donations
- Sara Bryant
- Amanda Wilson
- Jami Lohmueller
- Mary Canale
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