Duchenne Family Support Group & Wee Jamie's Journey

I have set myself the challenge of running a Marathon!

London Marathon- 27th April 2025.

This is a huge ask for me- someone who is not naturally fit and by no means "a runner". I started running in January this year, not being able to run for 1 minute without stopping was my starting point!

I am doing this to try and raise awareness, support and funds for 2 charities. The Duchenne Family Support Group and Wee Jamie's Journey.

Wee Jamie is the Son of my Husband's Best Friend since childhood.

In March 2022 Wee Jamie was diagnosed with Duchenne Muscular Dystrophy. 

Duchenne , known as DMD is a terminal illness which is found mainly in boys , it effects approximately 1 in 5000 live male births.

DMD is a muscle wasting disease which effects all muscles in the body including lungs heart and brain. There is currently no cure for this disease.

They are currently travelling overseas for treatments 4 times a year to help slow down his condition and improve his quality of life, however there is a financial strain as they do not recieve any help from the UK goverment with treatments costing around 60k per year!

I have very kindly been given a charity place for London Marathon by DFSG. My goal is to raise £2000 for this charity who support families who have been affected by this heartbreaking disease. They provide support through their free telephone helpline when families require some emotional support, through connecting other families going through the same experience. They organise and run days out for families and also subsidise holidays that are accessible to those with DMD.

Anything over and above £2000 will go straight to Wee Jamie's Journey to support with his continued requirement for treatments overseas.

Please donate anything you can, however big or small. Everything is so so appreciated.

If you managed to stick around to the end of this essay then thank you I'll share as much of my training and lead up to the marathons as I can- the good runs, the terrible ones, the tears and tantrums LET'S GO!