Liver Transplant for Charles

On July 12, 2016, 5 days before his 28th birthday and after several days of abdominal pain, Charles went into the ER for suspected appendicitis.  We never expected that he would leave there with the diagnosis of metastatic gastrointestinal stromal tumor (GIST) with a primary tumor in his stomach and multiple metastatic tumors to his liver.   After a partial gastrectomy on our anniversary in December 2016, a visit to the National Institute of Health in the summer of 2017, seeing a specialist for a year in Miami, working with doctors at Moffitt Cancer center in Tampa, and now having 4 liver embolizations, we continue to fight to find joy in Jesus and to live an abundant life as we wrestle with these health realities.  

At this time, we are at a crossroads.  There are no current medications that have a good probability of working for Charles' cancer type and all surgeons we have talked with do not feel all of his tumors can be removed.  As such, Charles needs a live donor liver transplant, an outside the box treatment that is costly and insurance may refuse to cover completely due to its investigational/experimental nature.  A liver transplant will involve travel for evaluation and transplant (possibly even to Europe) for Charles and a donor, housing near the transplant center for a week or two, lost wages, medical/surgical expenses, antirejection medications, meals, etc, hence the high Go Fund Me goal.  For those who prefer to give without the donation fees, PayPal ([email redacted]) or Venmo ($ErinKossivi) are great options too!  

Thank you so very much for reading, for praying, for following our journey ( ) and for loving us through this valley.  We cannot express the depths of our appreciation!

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Erin Kossivi 
Riverview, FL
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