Drews GBM treatment fund

Hello,   My name is Drew Kauffman and I am a 15-year brain tumor  survivor and a very proud father of 2 little boys Finley and Sawyer. Unfortunately, I was-rediagnosed with stage 4 Glioblastoma (GBM). I am now undergoing bi-weekly infusions at Dartmouth Hitchock which means I get to go to the cancer center quite often and it has gotten too be too much of a financial burden after 15 years for me to bear. So, anything that is donated will be used to pay for my trips and any costs associated with going to get treatment.   In 2004, I was diagnosed with a GBM, which is the most aggressive cancer that begins within the brain. Never one to give up, I have undergone 7 craniotomies, five rounds of chemotherapy a clinical trial at Dana Farber and a blast of external beam radiation to try and kill the cancer over the years. The surgeries have twice left me paralyzed down my left side.. and my left hand (3 times) using my refusal to give up over the years, I have regained some limited use but its been a hell of a fight to get this far!  On July 4th, my family and I traveled to the Dana Farber Cancer Institute in Boston.  At DF, I started the  process of being accepted into clinical trials for what's proven to be extremely hard to treat stage 4 GBM brain cancer. Unfortunately, if I want to get the best possible trial match and provide myself with the most opportunities I can through the clinical trials at DF, I will  need to undergo a 7th surgery  to get new tissue samples that will allow the pathologists to the discover the exact mutation of my tumor cells.  Pending on the outcome of the new tumor sample test results there are currently  2 trials with a spot for me on them and several others that are possibilites but the one that holds the most promise to me o f them is  one using  a Targeted Immunotherapy  vaccinne  VBI-1901  is a vacinne that  is designed to stimulate my immune systems anti-tumor response and kick it into overdrive.  Participating in the trial would mean trips to Boston every 3 weeks for treatments and all follow-up tests and appointments for at least a year or longer depending on the tumors progression.  Getting through this is will be physically and emotionally  difficult to say the least.  With the financial part being the biggest issue right now because we don't have the funds to pay  for a few months worth of trips to Boston, let alone a year of trips that can easily add up to thousands of dollars. In the past, I have done my best to sell some of my photography to help cover the expenses involved with having had so many surgeries and follow-up treatments over the years however, that just wont work this time.  I have done my best to not set-up a Gofundme  account ...i just do not see any other way of making this work financially. Just to take the family to have the surguery is 3- 4 days of hotels and that will pretty  much wipe me out.  It is not possible for me to cover all the expenses involved with me taking bus trips to Boston for treatment every 3 weeks especially if I can not just hop on the bus and return home  each time. I would greatly appreciate any help you can offer. I have survived for 14 years now and have no intentions of give up now or missing my boys first days of school! I have absolutely no desire to miss any more than necessary and, with your help, I can still be around to see my kids off to school as much as possible by being able to afford the trips...without it I will be looking into ways to stay in Boston for my treatments and doing  everything there  while my family stays in Vermont and keeps as normal a routine as possible for the kids .  Thank you for your support during these difficult times!                                                *Drew

Donations (0)

  • Kathi Faulkner 
    • $100 
    • 6 mos
  • stacy Skovron 
    • $50 
    • 7 mos
  • Anonymous 
    • $50 
    • 7 mos
  • Mary Brugger  
    • $50 
    • 7 mos
  • Amanda Vasta 
    • $25 
    • 9 mos
See all

Organizer

Drew Kauffman 
Organizer
Cavendish, VT
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