<div>Sienna Rose is a beautiful, happy, determined 2 year old girl diagnosed with MCOPS12.


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<div>We started to suspect something wasn’t quite right fairly early. She had feeding issues, low muscle tone and limited use of her legs. 


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<div>We were told that she had cerebral palsy, however after a clear mri they changed the diagnosis to global developmental delay.  Finally sienna was diagnosed with Syndromic Microphthalmia 12 (MCOPS12), after extensive genetic testing.


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<div>MCOPS12 is an extremely rare neurological disease. This syndrome is degenerative, so without a cure her symptoms will continue to get worse. Common symptoms are severe (progressive) movement disorders, intellectual disorders, microphthalmia (small eyes with vision often affected). Other malformations are also common.


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<div>Sienna is one of approx 40 children in the world with this syndrome. While research has started for a cure, it is in very early stages. More funding is needed in research and development including safe testing and human trials. 


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<div>We will be fund-raising to support this incredibly important research.


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<div>Please help us find a cure for our beautiful Sienna.


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<div>No donation is too small. 

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<div>For further information on mcops12 please see the website below


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<div><a href="https://rarbmutation.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://rarbmutation.org</a>


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<div>Siennas Facebook page: A Cure for Sienna
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<div>Sienna’s Instagram page: <a href="https://instagram.com/acureforsienna?igshid=YmMyMTA2M2Y=" target="_blank" class="" rel="nofollow noopener noreferrer">https://instagram.com/acureforsienna?igshid=YmMyMTA2M2Y=</a>


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