Hello everyone my name is Norman, I was named after my Father. Recently he was diagnosed with multiple myeloma. To start I want tell you a bit about my life. Ever since I was young I've struggled through life with severe Anxiety. I've always had a rough time engaging with people. For a while I dealt with Agoraphobia. I had trouble getting or keeping jobs. Through all of this my Father has always been there. He's always supported me and been understanding of what I'm going through. I've had a place to live without judgment because I couldn't do it on my own. I don't know where I would be without him.
It all happened at once. Our fight started back in August, he was having trouble with exhaustion and his Blood Pressure being consistently higher than normal. He talked with his Primary Doctor and she increased his Lisinopril dose. After increasing it his blood pressure just seemed to get worse so she raised it again. He was taking a smaller dose of 10mg to start. This would go on for a few weeks she raise it a couple more times and added HZTC. So he was now taking 40mg lisinopril hctz and his Blood pressure was the highest it's ever been on a consistent basis. He kept complaining to the doctor that every time he would take a higher dose his blood pressure would increase, they just told him to keep taking it. Luckily he had an appointment with his cardiologist during which he had labs done. Later the same day we were told we had to get him to Wilson Hospital ER because he needed to be admitted for Dialysis because his kidneys were shutting down and he was severely dehydrated. I am certain had it not been for his Cardiologist he would not be with us right now. The increase in his dosage of lisinopril pushed his kidneys to failing. We rushed him to the ER and after what seemed like forever he was finally admitted. He was so dehydrated they were struggling to find a vein to draw blood from.
He would be hospitalized for the next several weeks. A few days after his admission they performed a bone marrow biopsy to confirm his Myeloma had progressed into Multiple Myeloma. We started his chemo treatment while still hospitalized. He would be getting weekly doses of Velcade and Cytoxan. After 3 weeks he was finally released having to continuing his chemo and dialysis treatments. For those that don't know Multiple Myeloma is a type of blood cancer that affects the immune system and starts in specific white blood cells called plasma cells. These cells are found mostly in bone marrow and are an important part of the immune system because they produce a number of antibodies used by our bodies to fight infection. The Symptoms of Multiple Myeloma consist of Pain, Fatigue, Infections, Kidney failure, and easy bleeding/bruising.
This has been extra difficult while dealing with the COVID Pandemic from constant testing and screws up from medical professionals preventing his immediate care. Just for a COVID test we have to travel over an hour out of our way. To later find out on one occasion that the test center had performed the swab incorrectly resulting in no specimen. This caused us to have to readmit my father to the hospital for dialysis because the treatment center couldn't admit him with out a more recent COVID test. Then to drive back out to the same facility for yet another COVID test. This is just one instance of the obstacles we've had face.
I am making a GoFundMe out of sheer desperation. I wish I didn't have to ask for help but we cannot do this on our own. All his life my Father even though struggling with his own hardships has always tried his very best to take care of and be there for me and my siblings. I am currently taking care of him full time. I struggle with severe anxiety and don't have time to get a job and take care of him Simultaneously. I'm working on getting a position with his insurance to be his care provider but it's a slow and lengthy process.
I am reaching out with hopes that with the help of others I can make a difference in our lives and increase the chances that my father gets through this. All money would go towards Treatment, Transportation and Food expense.
Thank You for taking the time to read this.
- Cassidy Quiett
- Lisa Foy
- Bryan Neilan