My husband Levi Summerlin at the age of 27 was diagnosed with ALS.. That was 5 1/2 years ago.. It turned our family upside down the moment we got the final test results from shands hospital.. A once very active father was now faced with such a crippling disease.. He lost the movement in his arms then his legs and three weeks before Christmas 2013 he lost the ability to breathe on his own.. He given a trache to help him breathe.. Levi now has to have 24hr care.. He is finally at home after being in a nursing home for 7 months.. We are very happy to have him home but after us getting married this year they took his Medicaid away.. We dont get much home health care except a cna 1 a week to help give him a bath and that wont last long.. We are so very grateful to have some caring family members and friends who help as much as they can.. praying for a cure or answers as to why before its too late..