Jaggers Fight Against EA

Our baby boy was diagnosed with severe Ebstein's Anomaly, an extremely rare heart disrase, at 20 weeks. Each month we have a doctors appointment in Beaver, Primary Children's in Salt Lake, Utah Valley Hospital in Provo, & at 30 weeks will also be going to the University of Utah. At 36 weeks I will have to stop working and will be admitted to the University of Utah where I will deliver and immediately after Jagger will be taken to Primary Children's to be closely monitored. If all goes well he will have his first heart surgery at 7-10 days after he is born. After his first surgery, we will be able to take him home dependant on his recovery. He will then need a series of heart surgeries and will always have cardiology appointments and follow ups to monitor his progress. It has been a rough road but we have been blessed & overwhelmed with the support from everyone. Every little bit has helped.