Thank you so much for visiting my page, something I never thought I would be setting up. Having fought stage IV cancer for almost two years, I have now ran out of options which makes my diagnosis terminal and we desperately need help to raise money for potentially life-saving drugs, and associated treatments which are not available on the NHS.
When I was 21 I had just finished my second year at Uni studying to be a primary school teacher, which is a career I have always dreamed of achieving. However, during my summer break in August 2017, my world was turned upside down when I was diagnosed with an incredibly rare and aggressive cancer called Alveolar Rhabdomyosarcoma, stage 4. The symptoms were so minimal (agonising back and leg pain) it had made its way around my entire body by the time I was diagnosed.
Since then I have undergone over 20 cycles of chemotherapy, 50 sessions of radiotherapy and numerous operations to try and stabilise my disease. We have now been told that I have stopped responding to the few drugs available for Sarcoma. However, after endless hours and incredibly late nights of research, we have found that the USA have a trial drug available which works alongside my current chemotherapy to try and slow the spread of my aggressive disease down.
Tumours are still growing, and the cancer is still aggressively spreading to more vital organs such as my liver and pancreas. It’s also spread to my hips and many other debilitating areas. This means my quality of life is very poor as I struggle to walk and my body is exhausted from all the treatment.
I am so grateful for the NHS. It has made me realise how incredibly lucky we are to have free healthcare, as I am now needing to fundraise enough money for possible targeted therapy and immunotherapy drugs which aren’t available on the NHS. I have exhausted all their resources and this is my last hope.
Due to my current chemotherapy and general cancer effects, I am also not well enough to fly to America to be part of the trial. Therefore we are actively exploring options to fund these privately within the U.K. and possibly abroad, which is why I desperately need your help. As a family we have never wanted to ask for money, however we have no choice as the potential extra costs are thousands of pounds a month.
This is my last hope, and should I not be well enough to receive the drugs or have any further treatment, then any funds we don’t use towards treatment will be donated to Sarcoma UK to help prevent anybody else going through half of what I have.
Please share this link around and donate if you can!
My family and I would be really grateful.
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YouTube: Daisy Ellis