Jessica's medical treatment help

Jessica is a 10 year old child who has faced many medical obstacles since birth.  Jessica has had a trach since she was 21 days old. and a G tube for supplemental feedings.  She was born with Pierre Robbin Sequence, which is a cleft pallate, enlarged tongue and smaller lower jaw.  She has had 5 cleft repairs. Jessica suffers from  Juvenille Rheumtoid Arthritis,which she has had since since 18 months old Jessica loves to dance, ballett and lyrical. She has to give up a lot of activites due to her JRA. Jessica needs to have infusions of a biological drug for herJRA.We have been fighting for over a year now to let her have them. Each monthly infusion costs $5900. Something I can not afford. Jessica has ended up in a wheel chair for a year and a half, something no parent likes to see. With the cold weather appropraching, her joints have already started to swell. Her fingers are the size of adults. Her knees and ankles are swelling also. She was diagnoised thru genetics with Sticklers, which affects her hearing, eye sight and joints, and Fetal Alcohol Spectrum Disorder from birth.  She also suffers from PTSD and episodic rage discontent, failure to thrive . She sees over 12 specialists and takes 15 meds a day.  She is hooked up to 3 different machines at night to keep her going.   
If you can find it in your heart to put a smile on her face and help pay for her treatments, we would be forever grateful to you.