Nakai's fight w/Abnormal Chromosome

I'm reaching out and asking for help so that I can pay my son's medical expenses due to insurance not covering all of his surgeries and expenses with me having to take him to the doctor's appointments 2-3 times a week for all of his medical disabilities. Nakai has a rare diagnosis that no other person has that the doctors are aware of. Nakai has abnormal chromosomes. Nakai recently had emergency surgery to have a trach placed in his throat and he's on the Ventilator 24hrs a day, also eats out of a G-Tube, he has his heart on the right side of his chest he also has 2 holes in his heart and his main pulmonary valve obstructed. Nakai has severe Scoliosis in his spine and it's getting worse to the point the doctor may put him in a permanent back brace or surgery. Nakai also is hypoglycemic and one lung that is clasped due to him getting pneumonia 6 times. Nakai is going to be 8 yrs old on September 2 and he's already had 13 surgeries. I no longer can work for the first time in 7yrs since I've had Nakai because he is on the Ventilator 24hrs a day and someone has to be awake monitoring the machine at all times. It's very difficult because Nakai is in the hospital every 3-4 months due to his medical complications, oxygen not being stable or his sugar dropping. Nakai has the most lovable spirit, he's such a strong and happy baby. I've been trying to take care of all of the bills and handle all of the responsibilities of doing everything but I now need help with Nakai's Medical bills and bills while I do my best to focus on Nakai's care and all his needs. I am trying to get caught up so that I can still give Nakai the best care by taking him to all of his appointments as well as making sure he receives his therapy 2 times a week and making sure I can still be able to pay the bills. I would appreciate any and all the love and support we can get for Nakai & family. You can also look up Nakai's Facebook page @ Nakai Kevin Jones continues to fight since 9/2/10 and learn more about Nakai and his journey since birth. Thank you for taking the time to read and learn about Nakai's Story
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Organizer

Briana Antwon Jones 
Organizer
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